Disability rights critique of prenatal genetic testing: reflections and recommendations

E Parens, A Asch - Mental retardation and developmental …, 2003 - Wiley Online Library
Using prenatal tests to prevent the birth of babies with disabilities seems to be self‐evidently
good to many people. Even if the testing will not help bring a healthy baby to term this time, it …

Special supplement: The disability rights critique of prenatal genetic testing reflections and recommendations

E Parens, A Asch - The Hastings Center Report, 1999 - JSTOR
When I first thought to put togeth-er a project to examine the disability rights critique of
prenatal genetic testing, Eric Juengst was chief of the Eth-ical, Social, and Legal Implications …

[DOC][DOC] Disability, bioethics and human rights

A Asch - Handbook of disability studies, 2001 - courses.washington.edu
In 1989, Canadian philosopher Susan Wendell characterized the way bioethics literature
discusses disability as follows:" Under what conditions is it morally permissible/right to kill/let …

The routinization of prenatal testing

SM Suter - American journal of law & medicine, 2002 - cambridge.org
By now everyone is familiar with the recent accomplishments of the Human Genome Project.
Accomplished in ten, rather than the initially expected fifteen, years, the human genome has …

Are good intentions good enough?: Informed consent without trained interpreters

LM Hunt, KB de Voogd - Journal of general internal medicine, 2007 - Springer
Objective To examine the informed consent process when trained language interpreters are
unavailable. Background Ensuring sufficient patient understanding for informed consent is …

“Testing times, challenging choices”: an Australian study of prenatal genetic counseling

JM Hodgson, LH Gillam, MA Sahhar… - Journal of genetic …, 2010 - Springer
In many countries pregnant women deemed to be at increased risk for fetal anomaly
following a screening test may attend a genetic counseling session to receive information …

[图书][B] Community genetics and genetic alliances: eugenics, carrier testing, and networks of risk

AE Raz - 2009 - taylorfrancis.com
Carrier testing of adults provides information about the risk of passing a genetic mutation to
your children, leading to reproductive (and some say, eugenic) decisions. Excessive carrier …

The evolving concept of non-directiveness in genetic counselling

A Clarke - History of human genetics: Aspects of its development …, 2017 - Springer
Debates about the core values of genetic counselling have drawn on various conceptions of
'non-directiveness' as a point of reference throughout the second half of the twentieth …

[PDF][PDF] Diagnóstico pré-natal e aborto seletivo: um desafio à prática e às políticas

A Asch - Physis: Revista de Saúde Coletiva, 2003 - SciELO Public Health
Este artigo defende o argumento de que a popularização do aborto seletivo com as
modernas técnicas de diagnóstico pré-natal representa um risco à integridade moral dos …

Conflict of interest policies at Canadian universities: Clarity and content

B Williams-Jones, C MacDonald - Journal of Academic Ethics, 2008 - Springer
Discussions of conflict of interest (COI) in the university have tended to focus on financial
interests in the context of medical research; much less attention has been given to COI in …