[HTML][HTML] Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature

C Gómez-Vírseda, Y De Maeseneer, C Gastmans - BMC medical ethics, 2019 - Springer
Background Respect for autonomy is a key concept in contemporary bioethics and end-of-
life ethics in particular. Despite this status, an individualistic interpretation of autonomy is …

Surrogacy relationships: a critical interpretative review

J Gunnarsson Payne, E Korolczuk… - Upsala journal of …, 2020 - Taylor & Francis
Based on a critical interpretative review of existing qualitative research investigating
accounts of 'lived experience'of surrogates and intended parents from a relational …

Protective or connective professionalism? How connected professionals can (still) act as autonomous and authoritative experts

M Noordegraaf - Journal of professions and organization, 2020 - academic.oup.com
Traditionally, professionals such as medical doctors, lawyers, and academics are protected.
They work within well-defined jurisdictions, belong to specialized segments, have been …

[HTML][HTML] Societal perceptions of caregivers linked to culture across 20 countries: Evidence from a 10-billion-word database

R Ng, N Indran - PLoS One, 2021 - journals.plos.org
Caregivers play an indispensable role in society. In 2017, 41 million family caregivers in the
United States provided approximately 34 billion hours of care to their aging parents …

The “we” in the “me” solidarity and health care in the era of personalized medicine

B Prainsack - Science, Technology, & Human Values, 2018 - journals.sagepub.com
This article challenges a key tacit assumption underpinning legal and ethical instruments in
health care, namely, that people are ideally bounded, independent, and often also …

[HTML][HTML] Female sex-specific considerations to improve rigor and reproducibility in cardiovascular research

DH Chang, SM Dumanski… - American Journal of …, 2023 - journals.physiology.org
Cardiovascular disease is the leading cause of death in women. Despite recognition of sex-
specific differences in cardiovascular health, females are underrepresented across all …

Data Refusal From Below: A Framework for Understanding, Evaluating, and Envisioning Refusal as Design

J Zong, JN Matias - ACM Journal on Responsible Computing, 2024 - dl.acm.org
Amidst calls for public accountability over large data-driven systems, feminist and
indigenous scholars have developed refusal as a practice that challenges the authority of …

The importance of living well now and relationships: a qualitative study of the barriers and enablers to engaging frail elders with advance care planning

S Combes, K Gillett, C Norton… - Palliative …, 2021 - journals.sagepub.com
Background: The population of frail elders is growing, and due to their vulnerability to
sudden deterioration, advance care planning is particularly important. However, advance …

Decadence and relational freedom among China's gay migrants: Subverting heteronormativity by 'lying flat'

J Gong, T Liu - China Information, 2022 - journals.sagepub.com
Departing from the prevailing, individualist perspective of freedom, emphasizing individuals'
independence and the maximization of self-interest via unconstrained decision-making, this …

The time has come to extend the 14-day limit

S McCully - Journal of Medical Ethics, 2021 - jme.bmj.com
For the past 40 years, the 14-day rule has governed and, by defining a clear boundary,
enabled embryo research and the clinical benefits derived from this. It has been both a piece …