Cross disorder comparisons of brain structure in schizophrenia, bipolar disorder, major depressive disorder, and 22q11. 2 deletion syndrome: a review of ENIGMA …
This review compares the main brain abnormalities in schizophrenia (SZ), bipolar disorder
(BD), major depressive disorder (MDD), and 22q11. 2 Deletion Syndrome (22q11DS) …
(BD), major depressive disorder (MDD), and 22q11. 2 Deletion Syndrome (22q11DS) …
The tension between data sharing and the protection of privacy in genomics research
J Kaye - Annual review of genomics and human genetics, 2012 - annualreviews.org
Next-generation sequencing and global data sharing challenge many of the governance
mechanisms currently in place to protect the privacy of research participants. These …
mechanisms currently in place to protect the privacy of research participants. These …
[图书][B] The postgenomic condition: Ethics, justice, and knowledge after the genome
J Reardon - 2019 - degruyter.com
Now that we have sequenced the human genome, what does it mean? InThe Postgenomic
Condition, Jenny Reardon critically examines the decade after the Human Genome Project …
Condition, Jenny Reardon critically examines the decade after the Human Genome Project …
From consent to institutions: designing adaptive governance for genomic biobanks
KC O'Doherty, MM Burgess, K Edwards… - Social science & …, 2011 - Elsevier
Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …
and ethical challenges associated with the implementation and operation of biobanks are …
[HTML][HTML] If you build it, they will come: unintended future uses of organised health data collections
Background Health research increasingly relies on organized collections of health data and
biological samples. There are many types of sample and data collections that are used for …
biological samples. There are many types of sample and data collections that are used for …
Broad consent in biobanking: reflections on seemingly insurmountable dilemmas
T Caulfield, J Kaye - Medical Law International, 2009 - journals.sagepub.com
Biobanking has long generated a host of challenging ethical and legal issues, particularly in
relation to consent. A topic at the heart of current debates is the acceptability of the use of …
relation to consent. A topic at the heart of current debates is the acceptability of the use of …
[图书][B] Privacy, confidentiality, and health research
WW Lowrance - 2012 - books.google.com
The potential of the e-health revolution, increased data sharing, database linking, biobanks
and new techniques such as geolocation and genomics to advance human health is …
and new techniques such as geolocation and genomics to advance human health is …
When humans are the exception: Cross-species databases at the interface of biological and clinical research
S Leonelli - Social Studies of Science, 2012 - journals.sagepub.com
Cross-species comparison has long been regarded as a stepping-stone for medical
research, enabling the discovery and testing of prospective treatments before they undergo …
research, enabling the discovery and testing of prospective treatments before they undergo …
Biosamples as gifts? How participants in biobanking projects talk about donation
L Locock, AMR Boylan - Health Expectations, 2016 - Wiley Online Library
Background In the UK, altruism has featured explicitly as an underpinning principle for
biobanking. However, conceptualizing donation as altruistic downplays the role of …
biobanking. However, conceptualizing donation as altruistic downplays the role of …
[图书][B] Il regime giuridico dei dati della ricerca scientifica
P Guarda - 2021 - iris.unitn.it
La ricerca scientifica si basa sui dati, i quali rappresentano l'assunto di partenza per il
postulato di teoremi, per la dimostrazione di tesi, per la proposta di soluzioni affidanti. Il …
postulato di teoremi, per la dimostrazione di tesi, per la proposta di soluzioni affidanti. Il …