A consensus review on the development of palliative care for patients with chronic and progressive neurological disease

DJ Oliver, GD Borasio, A Caraceni… - European journal of …, 2016 - Wiley Online Library
Background and purpose The European Association of Palliative Care Taskforce, in
collaboration with the Scientific Panel on Palliative Care in Neurology of the European …

Palliative care and neurology: time for a paradigm shift

I Boersma, J Miyasaki, J Kutner, B Kluger - Neurology, 2014 - AAN Enterprises
Palliative care is an approach to the care of patients and families facing progressive and
chronic illnesses that focuses on the relief of suffering due to physical symptoms …

Neurorehabilitation: applied neuroplasticity

F Khan, B Amatya, MP Galea, R Gonzenbach… - Journal of …, 2017 - Springer
The prevalence of disability due to neurological conditions is escalating worldwide.
Neurological disorders have significant disability-burden with long-term functional and …

Towards conceptual convergence: a systematic review of psychological resilience in family caregivers of persons living with chronic neurological conditions

O McKenna, A Fakolade, K Cardwell… - Health …, 2022 - Wiley Online Library
Background The demand for family caregiving in persons with chronic neurological
conditions (CNCs) is increasing. Psychological resilience may empower and protect …

EAN guideline on palliative care of people with severe, progressive multiple sclerosis

A Solari, A Giordano, J Sastre-Garriga… - Journal of palliative …, 2020 - liebertpub.com
Background and Purpose: Patients with severe, progressive multiple sclerosis (MS) have
complex physical and psychosocial needs, typically over several years. Few treatment …

Unmet needs of people with severe multiple sclerosis and their carers: qualitative findings for a home-based intervention

C Borreani, E Bianchi, E Pietrolongo, I Rossi, S Cilia… - PloS one, 2014 - journals.plos.org
Background Few data on services for people with severe multiple sclerosis (MS) are
available. The Palliative Network for Severely Affected Adults with MS in Italy (PeNSAMI) …

[HTML][HTML] Rehabilitation and palliative care: histories, dialectics and challenges

H Timm, J Thuesen, D Clark - Wellcome open research, 2021 - ncbi.nlm.nih.gov
Rehabilitation and palliative care are health care fields with separate histories but some
recent convergences. Both have been identified as components within universal health …

Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease

L Ng, F Khan - Cochrane Database of Systematic Reviews, 2009 - cochranelibrary.com
Background Multidisciplinary care (MDC) is increasingly thought to be an important means
of symptomatic and supportive management for motor neuron disease (MND) but the …

Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: a cross-sectional study of patients with Parkinson's disease …

TZ Saleem, IJ Higginson, KR Chaudhuri… - Palliative …, 2013 - journals.sagepub.com
Background: Palliative care is rarely being offered to patients with Parkinson's disease. Aim:
To assess symptom prevalence, severity and palliative care needs in advanced stages of …

What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams …

J Firn, N Preston, C Walshe - Palliative medicine, 2016 - journals.sagepub.com
Background: Hospital-based specialist palliative care services are common, yet existing
evidence of inpatient generalist providers' perceptions of collaborating with hospital-based …