Conceptualizing inclusive research with people with intellectual disability

C Bigby, P Frawley… - Journal of Applied …, 2014 - Wiley Online Library
Background The inclusion of people with intellectual disability in research is a common
requirement of research funding. Little conceptual clarity is available to guide the conduct of …

Focus groups with people with learning disabilities

A Kaehne, C O'Connell - Journal of intellectual disabilities, 2010 - journals.sagepub.com
Focus groups are a widely accepted method in qualitative research. While there is a
burgeoning literature on the methodology of focus groups, using focus groups with people …

Reflections on doing inclusive research in the “Making Life Good in the Community” study

C Bigby, P Frawley - Journal of Intellectual and Developmental …, 2010 - Taylor & Francis
Background The involvement of people with intellectual disability in research is framed as
inclusive, denoting their active participation in its processes. However, questions are raised …

Research ethics and the use of visual images in research with people with intellectual disability

K Boxall, S Ralph - Journal of Intellectual and Developmental …, 2009 - Taylor & Francis
The aim of this paper is to encourage debate about the use of creative visual approaches in
intellectual disability research and discussion about Internet publication of photographs …

A collaborative group method of inclusive research

C Bigby, P Frawley… - Journal of Applied …, 2014 - Wiley Online Library
Background Funding bodies in A ustralia and the U nited K ingdom require research on
issues that affect the lives of people with intellectual disability to be inclusive. Debate …

From 'on'to 'with'to 'by:'People with a learning disability creating a space for the third wave of inclusive research

P Milner, P Frawley - Qualitative Research, 2019 - journals.sagepub.com
For people with a learning disability, Inclusive Research is promoted as the right way to
redress the hermeneutical injustice of their voices and theorising being excluded from the …

Setting global research priorities for developmental disabilities, including intellectual disabilities and autism

M Tomlinson, MT Yasamy, E Emerson… - Journal of …, 2014 - Wiley Online Library
Objectives The prevalence of intellectual disabilities (ID) has been estimated at 10.4/1000
worldwide with higher rates among children and adolescents in lower income countries. The …

Use of the Strengths and Difficulties Questionnaire to assess the mental health needs of children and adolescents with intellectual disabilities

E Emerson - Journal of Intellectual and Developmental Disability, 2005 - Taylor & Francis
Background Over the last decade increased attention has been paid to identifying and
responding to the mental health needs of children and adolescents with intellectual …

Research ethics committees and the benefits of involving people with profound and multiple learning disabilities in research

K Boxall, S Ralph - British Journal of Learning Disabilities, 2011 - Wiley Online Library
Accessible summary• People with learning disabilities who do not use speech are often left
out of research.• Ways of doing research which do not use words (for example, using …

Self‐advocates have the last say on friendship

KR McVilly, RJ Stancliffe, TR Parmenter… - Disability & …, 2006 - Taylor & Francis
This study reports the friendship experiences and aspirations of adults with intellectual
disabilities. The findings of a larger study were reviewed by an expert group of self …