Co-designing Community Out-of-hours Palliative Care Services: A systematic literature search and review

C Low, P Namasivayam, T Barnett - Palliative Medicine, 2023 - journals.sagepub.com
Background: In order to provide responsive, individualised and personalised care, there is
now greater engagement with patients, families and carers in designing health services. Out …

Children's unmet palliative care needs: a scoping review of parents' perspectives

G Constantinou, R Garcia, E Cook… - BMJ supportive & …, 2019 - spcare.bmj.com
Background Children with life-limiting conditions often have complex needs, making it
challenging for services to provide satisfactory care. Few studies consider whether services …

Duration and determinants of hospice-based specialist palliative care: a national retrospective cohort study

MJ Allsop, LE Ziegler, MR Mulvey… - Palliative …, 2018 - journals.sagepub.com
Background: Understanding service provision for patients with advanced disease is a
research priority, with a need to identify barriers that limit widespread integration of palliative …

Establishing key criteria to define and compare models of specialist palliative care: a mixed-methods study using qualitative interviews and Delphi survey

AM Firth, SM O'brien, P Guo, J Seymour… - Palliative …, 2019 - journals.sagepub.com
Background: Specialist palliative care services have various configurations of staff,
processes and interventions, which determine how care is delivered. Currently, there is no …

Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research

S Kochovska, FEM Murtagh, M Agar… - Palliative …, 2024 - journals.sagepub.com
Background: Palliative care is characterised by heterogeneous patient and caregiver
populations who are provided care in different health systems and a research base …

Is end-of-life care a priority for policymakers? Qualitative documentary analysis of health care strategies

KE Sleeman, J Leniz, IJ Higginson… - Palliative …, 2018 - journals.sagepub.com
Background: Prioritisation of end-of-life care by policymakers has been the subject of
extensive rhetoric, but little scrutiny. In England, responsibility for improving health and care …

Barriers to specialist palliative care in interstitial lung disease: a systematic review

JW Kim, C Atkins, AM Wilson - BMJ supportive & palliative care, 2019 - spcare.bmj.com
Background Current guidelines recommend palliative care based on individual needs for
patients with idiopathic pulmonary fibrosis. However, patients with interstitial lung disease …

What is the cost of palliative care in the UK? A systematic review

C Gardiner, T Ryan, M Gott - BMJ supportive & palliative care, 2018 - spcare.bmj.com
Objectives Little is known about the cost of a palliative care approach in the UK, and there is
an absence of robust activity and unit cost data. The aim of this study was to review evidence …

Online supportive conversations and reflection sessions (OSCaRS): a feasibility study with care home staff during the pandemic

L Johnston, J Hockley, J Watson… - International Journal of …, 2022 - research.ed.ac.uk
Care homes care for people with complex needs, supporting them to the end of life and are
now being seen as the 'de facto'hospice. Reflective debriefing for care home staff has been …

Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings …

P Guo, M Dzingina, AM Firth, JM Davies, A Douiri… - BMJ open, 2018 - bmjopen.bmj.com
Introduction Provision of palliative care is inequitable with wide variations across conditions
and settings in the UK. Lack of a standard way to classify by case complexity is one of the …