The economic costs of childhood disability
Childhood disabilities entail a range of immediate and long-term economic costs that have
important implications for the well-being of the child, the family, and society but that are …
important implications for the well-being of the child, the family, and society but that are …
Improving the quality of long-term care
PO Kohler, GS Wunderlich - 2001 - books.google.com
Among the issues confronting America is long-term care for frail, older persons and others
with chronic conditions and functional limitations that limit their ability to care for themselves …
with chronic conditions and functional limitations that limit their ability to care for themselves …
Atopic eczema: its impact on the family and financial cost
JC Su, AS Kemp, GA Varigos, TM Nolan - Archives of disease in …, 1997 - adc.bmj.com
OBJECTIVE To evaluate the impact of childhood atopic eczema on families and assess the
personal financial cost of its management. DESIGN Cross sectional survey. SETTING …
personal financial cost of its management. DESIGN Cross sectional survey. SETTING …
The psychological burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut‐allergic children
Primeau, Kagan, Lim, Dufresne, Duffy… - Clinical & Experimental …, 2000 - Wiley Online Library
Background Peanut‐allergic patients are affected by a condition which forces them and their
families to exercise extreme dietary vigilance and experience constant uncertainty …
families to exercise extreme dietary vigilance and experience constant uncertainty …
Financial burden for families of children with special health care needs
K Kuhlthau, KS Hill, R Yucel, JM Perrin - Maternal and child health journal, 2005 - Springer
Objectives: We describe family finance-related burden experienced by families with children
with special health care needs (CSHCN). The paper further seeks to describe correlates of …
with special health care needs (CSHCN). The paper further seeks to describe correlates of …
Technology‐dependent children and their families: a review
KWK Wang, A Barnard - Journal of advanced nursing, 2004 - Wiley Online Library
Background. Advances in medical technology and nursing care have enabled children who
rely on long‐term medical and technical support to reunite with their families and community …
rely on long‐term medical and technical support to reunite with their families and community …
Families' experiences of caring at home for a technology‐dependent child: a review of the literature
Kirk - Child: care, health and development, 1998 - Wiley Online Library
Recent medical advances have led to the emergence of a group of chronically ill children
who are dependent upon technology for their survival. Many of these children are cared for …
who are dependent upon technology for their survival. Many of these children are cared for …
Technology-dependency among patients discharged from a children's hospital: a retrospective cohort study
C Feudtner, NL Villareale, B Morray, V Sharp, RM Hays… - BMC pediatrics, 2005 - Springer
Background Advances in medical technology may be increasing the population of children
who are technology-dependent (TD). We assessed the proportion of children discharged …
who are technology-dependent (TD). We assessed the proportion of children discharged …
Supporting 'expert'parents—professional support and families caring for a child with complex health care needs in the community
S Kirk, C Glendinning - International journal of nursing studies, 2002 - Elsevier
In the United Kingdom a new group of children with intensive and complex health care
needs are now being cared for at home as a result of medical advances and government …
needs are now being cared for at home as a result of medical advances and government …
Living in a house of cards: family experiences with long-term childhood technology dependence
ME O'Brien - Journal of pediatric nursing, 2001 - Elsevier
Families' experiences of providing long-term home care for the child who is technology
dependent were explored via parental interviews. Families identified frequent change …
dependent were explored via parental interviews. Families identified frequent change …