The impact of disease on family members: a critical aspect of medical care

CJ Golics, MKA Basra, AY Finlay… - Journal of the Royal …, 2013 - journals.sagepub.com
Most existing health-related quality of life research concerns the impact of disease on
patients. However, in several medical specialties including dermatology, oncology, and …

Impact of caring for a child with cerebral palsy on the quality of life of parents: a systematic review of the literature

M Pousada, N Guillamón… - … of Developmental and …, 2013 - Springer
The implications of caring for a child with cerebral palsy (CP) are considerable, and parents
have to cope with many changing demands related to the specific needs of their child. A new …

European Society for Paediatric Gastroenterology, Hepatology and Nutrition guidelines for the evaluation and treatment of gastrointestinal and nutritional …

C Romano, M Van Wynckel, J Hulst… - Journal of pediatric …, 2017 - journals.lww.com
Objectives: Feeding difficulties are frequent in children with neurological impairments and
can be associated with undernutrition, growth failure, micronutrients deficiencies …

The impact of patients' chronic disease on family quality of life: an experience from 26 specialties

CJ Golics, MKA Basra, MS Salek… - International journal of …, 2013 - Taylor & Francis
Background Previous studies have assessed family quality of life in individual disease areas
and specialties. The aim of this study was to investigate the impact of disease on family …

Quality of life and mental health among parents of children with cerebral palsy: The influence of self‐efficacy and coping strategies

N Guillamón, R Nieto, M Pousada… - Journal of clinical …, 2013 - Wiley Online Library
Aims and objectives To explore the quality of life and mental health of caregivers of children
with cerebral palsy and to examine the impact of self‐efficacy and coping strategies on these …

Parenting stress and children with cerebral palsy: A European cross‐sectional survey

J Parkes, B Caravale, M Marcelli… - … Medicine & Child …, 2011 - Wiley Online Library
Aim The aim of this study was to describe stress in the parents of children with cerebral palsy
and investigate associations with very high stress. Method A cross‐sectional survey was …

Determinants of health-related quality of life among mothers of children with cerebral palsy

MH Lee, AK Matthews, C Park - Journal of pediatric nursing, 2019 - Elsevier
Purpose Caring for a child with cerebral palsy (CP) can impact both the physical and mental
health of parents. However, determinants associated with health-related quality of life …

Epidemiology of cerebral palsy

C Cans, J De-la-Cruz, MA Mermet - Paediatrics and child health, 2008 - Elsevier
Definition of cerebral palsy (CP) has become more precise in recent years and, even if CP
remains an umbrella term, a simple classification system for CP types has been proposed …

Antenatal and intrapartum interventions for preventing cerebral palsy: an overview of Cochrane systematic reviews

E Shepherd, RA Salam, P Middleton… - Cochrane Database …, 2017 - cochranelibrary.com
Background Cerebral palsy is an umbrella term encompassing disorders of movement and
posture, attributed to non‐progressive disturbances occurring in the developing fetal or …

Neonatal interventions for preventing cerebral palsy: an overview of Cochrane Systematic Reviews

E Shepherd, RA Salam, P Middleton… - Cochrane Database …, 2018 - cochranelibrary.com
Background Cerebral palsy is an umbrella term that encompasses disorders of movement
and posture attributed to non‐progressive disturbances occurring in the developing foetal or …