Perspectives of people with Parkinson's disease and family carers about disease management in community settings: A cross‐country qualitative study
MV Navarta‐Sánchez, A Palmar‐Santos… - Journal of Clinical …, 2023 - Wiley Online Library
Aim To explore perceptions of people with Parkinson's disease and family carers about the
use and impact of health and social care services, community and voluntary sector …
use and impact of health and social care services, community and voluntary sector …
The Quality in Quality of Life in Parkinson's Disease: A Qualitative Meta‐Synthesis
M van Munster, AJ Pedrosa, C Künkler… - Movement Disorders …, 2024 - Wiley Online Library
Abstract Background Quality of life (QoL) is known to be impaired in people with Parkinson's
disease (PwPD). Not surprisingly, a considerable effort of health interventions is aimed at …
disease (PwPD). Not surprisingly, a considerable effort of health interventions is aimed at …
[HTML][HTML] Hopamine as personalized medicine for persons with Parkinson's Disease
MA Noordegraaf, SW van den Berg… - Journal of Parkinson's …, 2023 - content.iospress.com
Prescribing dopamine replacement therapy remains the most common approach used by
physicians who strive to support persons with Parkinson's disease. In this viewpoint, we …
physicians who strive to support persons with Parkinson's disease. In this viewpoint, we …
“Out and proud…. in all your shaking glory” the wellbeing impact of a dance program with public dance performance for people with Parkinson's disease: a qualitative …
SJ Carroll, MJ Dale, K Bail - Disability and Rehabilitation, 2023 - Taylor & Francis
Purpose To explore if and how Parkinson's disease dance class participation and public
performance contributes to perceptions of wellbeing. Materials and Methods A qualitative …
performance contributes to perceptions of wellbeing. Materials and Methods A qualitative …
[HTML][HTML] Narrative medicine pinpoints loss of autonomy and stigma in Parkinson's disease
BW Florijn, R Kloppenborg, AA Kaptein… - npj Parkinson's …, 2023 - nature.com
Parkinson's disease characteristics can create a self-perceived sense of stigmatization and
disapproval by others, thereby affecting self-perceived autonomy. This study investigated the …
disapproval by others, thereby affecting self-perceived autonomy. This study investigated the …
[HTML][HTML] Using a clinical formulation to understand psychological distress in people affected by Huntington's disease: A descriptive, evidence-based model
Huntington's disease (HD) is an inherited, life-limiting neurodegenerative condition. People
with HD experience changes in cognitive, motor and emotional functioning, and can also …
with HD experience changes in cognitive, motor and emotional functioning, and can also …
[HTML][HTML] An Ethnographic Study of Patient Life Experience in Early-Stage Parkinson's Disease in the United States and Germany
T Carmody, R Park, E Bennett, E Kuret, B Klein… - Neurology and …, 2024 - Springer
Introduction Existing qualitative research on early-stage Parkinson's disease draws on
patients' reported disease experience, aiming to capture the symptoms and impacts most …
patients' reported disease experience, aiming to capture the symptoms and impacts most …
Performing With Parkinson's: Leaving Traces
H Pohjola, E Sivak, ÅN Åström - Nordic Journal of Dance, 2023 - sciendo.com
This article aims to explore the experiences of eight dancers, who have Parkinson's disease
(PD), with dance as a performative form of the arts. The data of this qualitative research …
(PD), with dance as a performative form of the arts. The data of this qualitative research …
[HTML][HTML] Transitions and challenges for people with Parkinson's and their family members: A qualitative study
Objective To explore the experiences and challenges of people with Parkinson's and their
family members living in the community through the lens of their transitions to better …
family members living in the community through the lens of their transitions to better …
'Living well on borrowed time': an interpretative phenomenological analysis of individuals' experiences of living with terminal cancer
L Hayden - 2024 - doras.dcu.ie
Annually, approximately 10,000 people in Ireland die due to cancer, with many following a
terminal cancer (TC) diagnosis. For TC patients, the awareness of their approaching death …
terminal cancer (TC) diagnosis. For TC patients, the awareness of their approaching death …