Long‐term epilepsy outcome dynamics revealed by natural language processing of clinic notes

K Xie, RS Gallagher, RT Shinohara, SX Xie, CE Hill… - …, 2023 - Wiley Online Library
Objective Electronic medical records allow for retrospective clinical research with large
patient cohorts. However, epilepsy outcomes are often contained in free text notes that are …

Delineating clinical and developmental outcomes in STXBP1-related disorders

J Xian, KM Thalwitzer, J McKee, KR Sullivan, E Brimble… - Brain, 2023 - academic.oup.com
STXBP1-related disorders are among the most common genetic epilepsies and
neurodevelopmental disorders. However, the longitudinal epilepsy course and …

Development of a core outcome set for quality of life for adults with drug‐resistant epilepsy: a multistakeholder Delphi consensus study

S Chiang, R Moss, JM Stern, I Hughes… - …, 2023 - Wiley Online Library
Abstract Objective In 2017, the American Academy of Neurology (AAN) convened the AAN
Quality Measurement Set working group to define the improvement and maintenance of …

Development of an international standard set of outcomes and measurement methods for routine practice for adults with epilepsy: The International Consortium for …

JW Mitchell, F Sossi, I Miller, PB Jaber, Z Das‐Gupta… - …, 2024 - Wiley Online Library
At present, there is no internationally accepted set of core outcomes or measurement
methods for epilepsy clinical practice. Therefore, the International Consortium for Health …

Development of an international standard set of outcomes and measurement methods for routine practice for infants, children, and adolescents with epilepsy: The …

JW Mitchell, F Sossi, I Miller, PB Jaber, Z Das‐Gupta… - …, 2024 - Wiley Online Library
At present, there is no internationally accepted set of core outcomes or measurement
methods for epilepsy clinical practice. The International Consortium for Health Outcomes …

Epilepsy Management in Transgender and Gender Diverse People

CV Kulick-Soper, G Waldman - Current Treatment Options in Neurology, 2023 - Springer
Purpose of review The goal of this review is to outline important topics in epilepsy
management for transgender and gender diverse individuals. Specifically, we describe the …

About 1.5 million community-dwelling US adults with active epilepsy reported uncontrolled seizures in the past 12 months, and seizure control varied by annual family …

R Kobau, C Luncheon, KJ Greenlund - Epilepsy & Behavior, 2024 - Elsevier
Uncontrolled seizures among people with epilepsy increase risk of adverse health and
social outcomes including increased risk of death. Previous population-based studies have …

Implementing American Academy of Neurology Quality Measures in Antigua Using Quality Improvement Methodology

G Osborne, O Valenti, J Jarvis, E Wentzel… - Neurology: Clinical …, 2024 - AAN Enterprises
Background and Objectives The American Academy of Neurology has developed quality
measures related to various neurologic disorders. A gap exists in the implementation of …

Development of a natural language processing algorithm to extract seizure types and frequencies from the electronic health record

BM Decker, A Turco, J Xu, SW Terman, N Kosaraju… - Seizure, 2022 - Elsevier
Objective To develop a natural language processing (NLP) algorithm to abstract seizure
types and frequencies from electronic health records (EHR). Background Seizure frequency …

The impact of the time to last seizure before admission to the epilepsy monitoring unit (EMU) on epilepsy classifications

T Banjer, D Attiya, S Baeesa, Y Al Said, F Babtain - Epilepsy & Behavior, 2023 - Elsevier
Introduction and background The impact of the timing of the last seizure (TTLS) prior to
admission to the epilepsy monitoring unit (EMU) on epilepsy classification is unclear for …