Caring for a Child with Chronic Illness: Effect on Families and Siblings

K Huth, H Frankel, S Cook… - Pediatrics in …, 2023 - einstein.elsevierpure.com
Almost 20% of children have some form of chronic illness. Chronic illness in children can
have a profound effect on their families and siblings in a variety of ways. Recognizing these …

Household impacts of child health shocks

E Skoy - Journal of Population Economics, 2024 - Springer
Women bear a disproportionate share of the unpaid labor within a household, which
contributes to gender gaps in life and relationship satisfaction. This paper examines how an …

“it'sa medical condition… you need to support as much as possible”: a qualitative analysis of teachers' experiences of chronic fatigue syndrome/myalgic …

A Brigden, A Shaw, E Crawley - BMC pediatrics, 2021 - Springer
Background An increasing number of children with complex health needs are being
educated in mainstream classes. CFS/ME is a complex and disabling condition, and there is …

Reference Values for the German Version of the Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) from a General Population Sample

L Krol, Y Hagmayer, N Steinbuechel, K Cunitz… - Journal of Personalized …, 2024 - mdpi.com
Assessment of health-related quality of life (HRQoL) after pediatric traumatic brain injury
(TBI) has been limited in children and adolescents due to a lack of disease-specific …

Self-management and health care transition: Trials, tribulations and triumphs

CL Betz - Journal of pediatric rehabilitation medicine, 2017 - content.iospress.com
PURPOSE: The purpose of this article is to provide perspectives pertaining to the
importance of fostering comprehensive self-management competencies of AEA-SHCN, with …

A flattening of the curve: the challenge of disparate growth rates in the pediatric subspecialties

RJ Vinci, DW Clapp, A Reed, L Degnon - The Journal of pediatrics, 2023 - jpeds.com
A Flattening of the Curve: The Challenge of Disparate Growth Rates in the Pediatric
Subspecialties - The Journal of Pediatrics Skip to Main Content Advertisement The Journal of …

School nurses as vital members of 504 and individualized educational program teams: Do district-level policies make a difference in school nurses' involvement?

EM McCabe, JR Kaskoun… - Policy, Politics, & …, 2021 - journals.sagepub.com
In 2019, 10 to 20 million school-aged youth were identified as having a chronic health
condition or disability. However, little is known about US school district policies on school …

Remote monitoring of children with chronic illness using wearable vest

R Jansi, R Amutha, S Radha - Telemedicine Technologies, 2019 - Elsevier
This paper presents the design and development of a textile-based wearable smart vest that
can be used to monitor children who are suffering from chronic illness. This system provides …

Health and educational implications of prematurity in the United States: National Survey of Children's Health 2011/2012 data

MM Kelly - Journal of the American Association of Nurse …, 2018 - journals.lww.com
Background and purpose: Preterm birth is a significant public health issue, with children
born prematurely experiencing educational and health difficulties throughout childhood. The …

Designing Well-Being: A Qualitative Investigation of Young Patients' Perspectives on the Material Hospital Environment

S Payam, J Hossaini, K Zaschka… - … Research & Design …, 2023 - journals.sagepub.com
Background: Physical surroundings of healthcare facilities are suggested to influence young
patients' well-being and hospitalization experiences. Purpose: The current research seeks to …