The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula

U Krishnan, MW Dumont, H Slater, BD Gold… - Nature Reviews …, 2023 - nature.com
Oesophageal atresia–tracheoesophageal fistula (EA-TEF) is a common congenital digestive
disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological …

Fetal body MRI and its application to fetal and neonatal treatment: an illustrative review

JR Davidson, A Uus, J Matthew, AM Egloff… - The Lancet Child & …, 2021 - thelancet.com
This Review depicts the evolving role of MRI in the diagnosis and prognostication of
anomalies of the fetal body, here including head and neck, thorax, abdomen and spine. A …

Patient-reported outcome measures in pediatric surgery-A systematic review

AS Besner, JL Ferreira, N Ow, R Gaffar… - Journal of Pediatric …, 2022 - Elsevier
Purpose With improved long-term survival rates, measuring the quality of surgical care has
gradually shifted from clinical morbidity and mortality to patient-reported outcome measures …

Psychometric performance of a condition-specific quality-of-life instrument for Dutch children born with esophageal atresia

CA Ten Kate, H IJsselstijn, M Dellenmark-Blom… - Children, 2022 - mdpi.com
A condition-specific instrument (EA-QOL©) to assess quality of life of children born with
esophageal atresia (EA) was developed in Sweden and Germany. Before implementing this …

Longitudinal health status and quality of life after esophageal atresia repair

CA Ten Kate, AB Rietman… - Journal of Pediatric …, 2021 - journals.lww.com
Objectives: To longitudinally evaluate self-reported and proxy-reported health status (HS)
and quality of life (QoL) of school-aged children born with esophageal atresia (EA) …

Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish study

M Dellenmark-Blom, S Örnö Ax, E Öst… - Orphanet Journal of …, 2022 - Springer
Abstract Background In 10–15% of children with esophageal atresia (EA) delayed
reconstruction of esophageal atresia (DREA) is necessary due to long-gap EA and/or …

Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries

International EA-QoL Group - Frontiers in Pediatrics, 2023 - frontiersin.org
Background Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …

Outcome of long gap esophageal atresia at 6 years: A prospective case control cohort study

A Bourg, F Gottrand, B Parmentier, J Thomas… - Journal of Pediatric …, 2023 - Elsevier
Background Data EA is the most frequent congenital esophageal malformation. Long gap
EA remains a therapeutic challenge for pediatric surgeons. A case case-control prospective …

Prevalence of mental health problems, associated factors, and health-related quality of life in children with long-gap esophageal atresia in Sweden

M Dellenmark-Blom, SÖ Ax, HE Lilja, C Reilly… - Journal of Pediatric …, 2023 - Elsevier
Background Children with long-gap esophageal atresia (LGEA) face a high risk of digestive
and respiratory morbidity, but their mental health outcomes have not been investigated. We …

Clinical outcome, quality of life, and mental health in long-gap esophageal atresia: comparison of gastric sleeve pull-up and delayed primary anastomosis

M Boettcher, M Hauck, M Fuerboeter, J Elrod… - Pediatric Surgery …, 2023 - Springer
Introduction Pediatric surgeons have yet to reach a consensus whether a gastric sleeve pull-
up or delayed primary anastomosis for the treatment of esophageal atresia (EA), especially …