Biobanking in health care: evolution and future directions

L Coppola, A Cianflone, AM Grimaldi… - Journal of translational …, 2019 - Springer
Background The aim of the present review is to discuss how the promising field of
biobanking can support health care research strategies. As the concept has evolved over …

The Geisinger MyCode community health initiative: an electronic health record–linked biobank for precision medicine research

DJ Carey, SN Fetterolf, FD Davis, WA Faucett… - Genetics in …, 2016 - nature.com
Purpose: Geisinger Health System (GHS) provides an ideal platform for Precision Medicine.
Key elements are the integrated health system, stable patient population, and electronic …

Impact of biobanks on research outcomes in rare diseases: a systematic review

M Garcia, J Downs, A Russell, W Wang - Orphanet journal of rare …, 2018 - Springer
Background Alleviating the burden of rare diseases requires research into new diagnostic
and therapeutic strategies. We undertook a systematic review to identify and compare the …

To donate or not to donate? Future healthcare professionals' opinions on biobanking of human biological material for research purposes

J Domaradzki, J Czekajewska, D Walkowiak - BMC Medical Ethics, 2023 - Springer
Background Over the last few decades biobanks have been recognised as institutions that
may revolutionise biomedical research and the development of personalised medicine …

Results of the Seventh Scientific Workshop of ECCO: precision medicine in IBD—what, why, and how

C Fiocchi, G Dragoni, D Iliopoulos… - Journal of Crohn's …, 2021 - academic.oup.com
Many diseases that affect modern humans fall in the category of complex diseases, thus
called because they result from a combination of multiple aetiological and pathogenic …

[HTML][HTML] Organoids for personalized treatment of Cystic Fibrosis: Professional perspectives on the ethics and governance of organoid biobanking

MA Lensink, SN Boers, KR Jongsma, SE Carter… - Journal of Cystic …, 2021 - Elsevier
Background Organoid technology is emerging rapidly as a valuable tool for precision
medicine, particularly in the field of Cystic Fibrosis (CF). However, biobank storage and use …

When biobanks meet religion: Association between religiosity and attitudes of Polish medical students toward biobanking of human biological material for research …

J Domaradzki, D Walkowiak - Journal of religion and health, 2024 - Springer
While biobanking is expanding globally, the empirical evidence concerning the impact of
religion on future healthcare professionals' awareness and willingness to donate …

The Japanese Society of Pathology Guidelines on the handling of pathological tissue samples for genomic research: standard operating procedures based on …

Y Kanai, H Nishihara, Y Miyagi… - Pathology …, 2018 - Wiley Online Library
Genome research using appropriately collected pathological tissue samples is expected to
yield breakthroughs in the development of biomarkers and identification of therapeutic …

Biobanks, data sharing, and the drive for a global privacy governance framework

ES Dove - Journal of Law, Medicine & Ethics, 2015 - cambridge.org
Spurred by a confluence of factors, most notably the decreasing cost of high-throughput
technologies and advances in information technologies, a number of population research …

Validation of an electronic medical record–based algorithm for identifying posttraumatic stress disorder in US veterans

KM Harrington, R Quaden, MB Stein… - Journal of traumatic …, 2019 - Wiley Online Library
We developed an algorithm for identifying US veterans with a history of posttraumatic stress
disorder (PTSD), using the Department of Veterans Affairs (VA) electronic medical record …