End-of-life communication needs for adolescents and young adults with cancer: recommendations for research and practice

UM Sansom-Daly, CE Wakefield… - Journal of Adolescent …, 2020 - liebertpub.com
A growing evidence base highlights the negative impact of poor psychosocial care at end-of-
life. Adolescents and young adults (AYAs) 15–39 years of age with cancer face unique …

[HTML][HTML] Patients' perspectives related to ethical issues and risks in precision medicine: a systematic review

L Ahmed, A Constantinidou, A Chatzittofis - Frontiers in Medicine, 2023 - frontiersin.org
Background Precision medicine is growing due to technological advancements including
next generation sequencing techniques and artificial intelligence. However, with the …

[HTML][HTML] Patients' and professionals' views related to ethical issues in precision medicine: a mixed research synthesis

A Erdmann, C Rehmann-Sutter, C Bozzaro - BMC medical ethics, 2021 - Springer
Background Precision medicine development is driven by the possibilities of next generation
sequencing, information technology and artificial intelligence and thus, raises a number of …

“I remember how I felt, but I don't remember the gene”: Families' experiences of cancer‐related genetic testing in childhood

BC McGill, CE Wakefield, J Vetsch, Q Lim… - Pediatric Blood & …, 2019 - Wiley Online Library
Background Genetic testing in children for hereditary cancer predisposition syndromes
(CPSs) involves unique psychosocial and family‐systems considerations. This retrospective …

Healthcare professionals' attitudes toward cancer precision medicine: A systematic review

J Vetsch, CE Wakefield, P Techakesari, M Warby… - Seminars in …, 2019 - Elsevier
Use of precision medicine in oncology is burgeoning and can provide patients with new
treatment options. However, it is not clear how precision medicine is impacting healthcare …

Experiences with genetic counseling, testing, and diagnosis among adolescents with a genetic condition: a scoping review

T Wainstein, SK Marshall, CJD Ross, AK Virani… - JAMA …, 2022 - jamanetwork.com
Importance The number of adolescents who are diagnosed with a genetic disorder is
increasing as genome sequencing becomes the standard of clinical diagnostic testing …

European standard clinical practice–Key issues for the medical care of individuals with familial leukemia

A Förster, C Davenport, N Duployez, M Erlacher… - European Journal of …, 2023 - Elsevier
Although hematologic malignancies (HM) are no longer considered exclusively sporadic,
additional awareness of familial cases has yet to be created. Individuals carrying a (likely) …

A systematic review of how young people live with inherited disease: What can we learn for Li-Fraumeni syndrome?

R Forbes Shepherd, A Lewis, LA Keogh… - Journal of adolescent …, 2018 - liebertpub.com
Purpose: Li-Fraumeni syndrome (LFS), a multiorgan cancer predisposition caused by
germline TP53 mutations, confers significant cancer risks for young people (15–39 years) …

Benefits and risks of standardization, harmonization and conformity to opinion in clinical laboratories

DL Church, C Naugler - Critical Reviews in Clinical Laboratory …, 2019 - Taylor & Francis
Large laboratory systems that include facilities with a range of capabilities and capacity are
being created within consolidated healthcare systems. This paradigm shift is being driven by …

Advances in pediatric psychooncology

L Wiener, KA Devine, AL Thompson - Current opinion in pediatrics, 2020 - journals.lww.com
Advances in pediatric psychooncology : Current Opinion in Pediatrics Advances in pediatric
psychooncology : Current Opinion in Pediatrics Log in or Register Subscribe to journalSubscribe …