Background: With advances in genetic and genomic medicine, the optimal integration of
genetic services into the health care system remains of major concern in many countries …

One of the key ideas behind sequencing the human genome was the promise of
“personalized medicine.” The idea was that genetic information could be used to make …

Background Patient genomic data are rapidly becoming part of clinical decision making.
Within a few years, full genome expression profiling and genotyping will be affordable …

INTRODUCTION: Mutations in the BRCA (breast cancer) 1 and 2 genes are thought to lead
to 5–10% of breast cancers. AIM: A qualitative study to explore six New Zealand women's …

The diagnosis of a genetic disorder may be perceived by family members as a threatening,
stressful life event because of the lack of either prior experience or the knowledge to …

Much of the fesearch that relates t0 the health benefits of participation in community groups,
and conversely the health fisk5 0f jS0lation and lack 0f life Control, focuses on what value or …

Currently, there are an estimated six hundred genetic advocacy/support organizations in
existence throughout the United States and abroad. Groups consist of individuals and family …