Palliative care and neurology: time for a paradigm shift

I Boersma, J Miyasaki, J Kutner, B Kluger - Neurology, 2014 - AAN Enterprises
Palliative care is an approach to the care of patients and families facing progressive and
chronic illnesses that focuses on the relief of suffering due to physical symptoms …

Family and caregiver needs over the course of the cancer trajectory.

BA Given, CW Given, PR Sherwood - The journal of supportive …, 2012 - europepmc.org
When a patient is diagnosed with cancer, family members often assume responsibility for
providing care. They are typically involved not only with the diagnostic and treatment phases …

Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients

A Ullrich, L Ascherfeld, G Marx, C Bokemeyer… - BMC palliative …, 2017 - Springer
Background This pilot study aimed to investigate quality of life, psychological burden, unmet
needs, and care satisfaction in family caregivers of advanced cancer patients (FCs) during …

Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers

JM Clayton, KM Hancock, PN Butow… - The Medical Journal of …, 2007 - mja.com.au
Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in
the advanced stages of a life-limiting illness, and their caregivers | The Medical Journal of …

The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the …

C Woodman, J Baillie, S Sivell - BMJ supportive & palliative care, 2016 - spcare.bmj.com
Background Home is often reported as the preferred place of care for patients at the end-of-
life. The support of family caregivers is crucial if this is to be realised. However, little is known …

A desire to be seen: family caregivers' experiences of their caring role in palliative home care

M Linderholm, M Friedrichsen - Cancer nursing, 2010 - journals.lww.com
Primary health care is the base of Swedish healthcare, and many terminally ill patients are
cared for at home. A dying relative has a profound impact on his/her family members' …

Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review

YN Becqué, JAC Rietjens, AG van Driel… - International journal of …, 2019 - Elsevier
Background Family caregivers are crucial in end-of-life care. However, family caregiving
may involve a significant burden with various negative health consequences. Although …

Distress is interdependent in patients and caregivers with newly diagnosed incurable cancers

JM Jacobs, KM Shaffer, RD Nipp… - Annals of Behavioral …, 2017 - academic.oup.com
Background Individuals with advanced, incurable cancer often experience high physical and
psychological symptom burden. Family and friend caregivers are at risk for emotional …

Exploring the other side of cancer care: the informal caregiver

E Papastavrou, A Charalambous, H Tsangari - European Journal of …, 2009 - Elsevier
OBJECTIVES: To identify the caregiver outcomes among relatives caring for patients with
cancer and to examine the patient and family caregiver variables that predicted for caregiver …

Caregiving for the terminally ill: at what cost?

SM Aoun, LJ Kristjanson, DC Currow… - Palliative …, 2005 - journals.sagepub.com
This literature review exposes the nature and extent of physical and psychosocial morbidity
and economic disadvantage, home palliative caregivers suffer as a direct result of their …