[HTML][HTML] Family experiences and health outcomes following a loved ones' hospital discharge or death after cardiac arrest: A scoping review

DA Rojas, CE DeForge, SL Abukhadra, L Farrell… - Resuscitation plus, 2023 - Elsevier
Aim Synthesise the existing literature on experiences and health outcomes of family
members of adult cardiac arrest patients either after hospital discharge or death and identify …

Family outcomes and perceptions of end-of-life care in the intensive care unit: a mixed-methods review

C Chen, J Michaels, MA Meeker - Journal of palliative care, 2020 - journals.sagepub.com
The purpose of this review was to evaluate end-of-life care (EOLC) in the intensive care unit
(ICU) from the perspective of family members. Sandelowski's segregated approach from …

Prevalence of long-term decision regret and associated risk factors in a large cohort of ICU surrogate decision makers

SK Andersen, RA Butler, CCH Chang, R Arnold… - Critical Care, 2023 - Springer
Background Whether surrogate decision makers regret decisions about the use of life
support for incapacitated, critically ill patients remain uncertain. We sought to determine the …

Caregiver perceptions about their decision to pursue tracheostomy for children with medical complexity

S Nageswaran, SL Golden, WA Gower… - The Journal of pediatrics, 2018 - Elsevier
Objective To describe the perceptions of caregivers of children with medical complexity
(CMC) about their decision to pursue tracheostomy for their children, in particular the …

(Re) Conceptualising 'good'proxy decision-making for research: the implications for proxy consent decision quality

V Shepherd - BMC Medical Ethics, 2022 - Springer
People who are unable to make decisions about participating in research rely on proxies to
make a decision based on their wishes and preferences. However, patients rarely discuss …

Improving family intensive care unit experiences at the end of life: barriers and facilitators

FDK Ganz - Critical care nurse, 2019 - AACN
Experiencing the end of life of a family member in the intensive care unit is clearly difficult.
An important role of critical care nurses is to help family members through this challenging …

Decision-making in imminent extreme premature births: perceived shared decision-making, parental decisional conflict and decision regret

R Geurtzen, JFM van den Heuvel, JJ Huisman… - Journal of …, 2021 - nature.com
Objective To describe levels of perceived shared decision making (SDM), decisional conflict
(DC), and decision regret (DR) in prenatal counseling by pregnant women, partners …

[HTML][HTML] The Challenges in Using eHealth Decision Resources for Surrogate Decision-Making in the Intensive Care Unit

WN Sun, CY Kao - Journal of medical Internet research, 2024 - jmir.org
The mortality rate in intensive care units (ICUs) is notably high, with patients often relying on
surrogates for critical medical decisions due to their compromised state. This paper provides …

Surrogate satisfaction with decision making after intracerebral hemorrhage

S Sahgal, A Yande, BB Thompson, EP Chen… - Neurocritical care, 2021 - Springer
Abstract Background/Objective Surrogate decision makers for patients with intracerebral
hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining …

Decisional-regret trajectories from end-of-life decision making through bereavement

FH Wen, CH Hsieh, MM Hou, PJ Su, WC Shen… - Journal of Pain and …, 2023 - Elsevier
Context Regret plays a central role in surrogate decision making. Research on decisional
regret in family surrogates is scarce and lacks longitudinal studies to illustrate the …