Background: Informal caregivers are a significant part of the hospice and palliative care
landscape as members of the interdisciplinary care team. Despite this, little is known about …

Background Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2
to 4 years after the onset of symptoms. Although many people with the disease decide in …

Background: Amyotrophic lateral sclerosis (ALS) presents many transitions for
persons/people with ALS (PwALS) and their caregivers. Transitions are passages from one …

Background: Amyotrophic lateral sclerosis (ALS) is currently an incurable and fatal disease,
which often comes with a high symptom burden at the end-of-life stage. Little is known about …

The purpose of this mixed methods systematic review was to identify factors associated with
anticipatory grief, post-death grief, and prolonged grief in informal carers of people living …

The purpose of this study was to describe the meaning of the suffering experience of Korean
ALS family caregivers. This is a descriptive phenomenological study that included ten …

Amyotrophic lateral sclerosis (ALS) leads to death on average 2–4 years after the onset of
symptoms. Although many people with the disease decide in favour of life-sustaining …

BackgroundFamily carers of people living with motor neurone disease (MND) face
continuous changes and losses during the progression of the disease, impacting on their …

Long-term neurological conditions (LTNCs) cause physical and psychological symptoms
that have a significant impact on activities of daily living and quality of life. Multidisciplinary …

Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …