[HTML][HTML] Healthy play, better coping: The importance of play for the development of children in health and disease

SL Nijhof, CH Vinkers, SM van Geelen, SN Duijff… - Neuroscience & …, 2018 - Elsevier
Play is of vital importance for the healthy development of children. From a developmental
perspective, play offers ample physical, emotional, cognitive, and social benefits. It allows …

[HTML][HTML] Updated clinical practice recommendations for managing children with 22q11. 2 deletion syndrome

S Oskarsdottir, E Boot, TB Crowley, JCY Loo… - Genetics in …, 2023 - Elsevier
This review aimed to update the clinical practice guidelines for managing children and
adolescents with 22q11. 2 deletion syndrome (22q11. 2DS). The 22q11. 2 Society, the …

Long-term impact of adolescent chronic pain on young adult educational, vocational, and social outcomes

CB Murray, CB Groenewald, R de la Vega, TM Palermo - Pain, 2020 - journals.lww.com
Despite evidence of broad impact on daily functioning in adolescence, little is known
regarding the life course effects of childhood chronic pain. This is the first nationally …

Key elements for, and indicators of, a successful transition: an international Delphi study

JC Suris, C Akre - Journal of Adolescent Health, 2015 - Elsevier
Purpose The purpose of this study was to reach an international consensus to determine
what key elements should be part of a transition program and what indicators could be used …

Growing up with a chronic illness: social success, educational/vocational distress

GR Maslow, A Haydon, AL McRee, CA Ford… - Journal of Adolescent …, 2011 - Elsevier
OBJECTIVES: We compared adult educational, vocational, and social outcomes among
young adults with and without childhood-onset chronic illness in a nationally representative …

Long-term follow-up, clinical features, and quality of life in a series of 103 patients with hyperimmunoglobulinemia D syndrome

JCH van der Hilst, EJ Bodar, KS Barron, J Frenkel… - Medicine, 2008 - journals.lww.com
The hyperimmunoglobulinemia D and periodic fever syndrome (HIDS), one of the
autoinflammatory syndromes, is caused by mutations in the gene coding for mevalonate …

Preparing adolescents with chronic disease for transition to adult care: a technology program

JS Huang, L Terrones, T Tompane, L Dillon… - …, 2014 - publications.aap.org
BACKGROUND: Adolescents with chronic disease (ACD) must develop independent
disease self-management and learn to communicate effectively with their health care team …

Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls

AE Kazak, BW DeRosa, LA Schwartz… - Journal of clinical …, 2010 - ascopubs.org
Purpose The purpose of this study was to compare adolescent and young adult (AYA)
pediatric cancer survivors and peers without a history of serious illness on psychological …

A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions

A Colver, H McConachie, A Le Couteur… - BMC medicine, 2018 - Springer
Background Most evidence about what works in transitional care comes from small studies
in single clinical specialties. We tested the hypothesis that exposures to nine recommended …

Hospital‐to‐school transition for children with chronic illness: Meeting the new challenges of an evolving health care system

SR Shaw, PC McCabe - Psychology in the Schools, 2008 - Wiley Online Library
Chronic illness is common and has a profound impact on the education of affected children.
A variety of approaches and programs to facilitate the transition from hospital to school for …