[HTML][HTML] Healthy play, better coping: The importance of play for the development of children in health and disease
SL Nijhof, CH Vinkers, SM van Geelen, SN Duijff… - Neuroscience & …, 2018 - Elsevier
Play is of vital importance for the healthy development of children. From a developmental
perspective, play offers ample physical, emotional, cognitive, and social benefits. It allows …
perspective, play offers ample physical, emotional, cognitive, and social benefits. It allows …
[HTML][HTML] Updated clinical practice recommendations for managing children with 22q11. 2 deletion syndrome
S Oskarsdottir, E Boot, TB Crowley, JCY Loo… - Genetics in …, 2023 - Elsevier
This review aimed to update the clinical practice guidelines for managing children and
adolescents with 22q11. 2 deletion syndrome (22q11. 2DS). The 22q11. 2 Society, the …
adolescents with 22q11. 2 deletion syndrome (22q11. 2DS). The 22q11. 2 Society, the …
Long-term impact of adolescent chronic pain on young adult educational, vocational, and social outcomes
Despite evidence of broad impact on daily functioning in adolescence, little is known
regarding the life course effects of childhood chronic pain. This is the first nationally …
regarding the life course effects of childhood chronic pain. This is the first nationally …
Key elements for, and indicators of, a successful transition: an international Delphi study
JC Suris, C Akre - Journal of Adolescent Health, 2015 - Elsevier
Purpose The purpose of this study was to reach an international consensus to determine
what key elements should be part of a transition program and what indicators could be used …
what key elements should be part of a transition program and what indicators could be used …
Growing up with a chronic illness: social success, educational/vocational distress
GR Maslow, A Haydon, AL McRee, CA Ford… - Journal of Adolescent …, 2011 - Elsevier
OBJECTIVES: We compared adult educational, vocational, and social outcomes among
young adults with and without childhood-onset chronic illness in a nationally representative …
young adults with and without childhood-onset chronic illness in a nationally representative …
Long-term follow-up, clinical features, and quality of life in a series of 103 patients with hyperimmunoglobulinemia D syndrome
JCH van der Hilst, EJ Bodar, KS Barron, J Frenkel… - Medicine, 2008 - journals.lww.com
The hyperimmunoglobulinemia D and periodic fever syndrome (HIDS), one of the
autoinflammatory syndromes, is caused by mutations in the gene coding for mevalonate …
autoinflammatory syndromes, is caused by mutations in the gene coding for mevalonate …
Preparing adolescents with chronic disease for transition to adult care: a technology program
JS Huang, L Terrones, T Tompane, L Dillon… - …, 2014 - publications.aap.org
BACKGROUND: Adolescents with chronic disease (ACD) must develop independent
disease self-management and learn to communicate effectively with their health care team …
disease self-management and learn to communicate effectively with their health care team …
Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls
Purpose The purpose of this study was to compare adolescent and young adult (AYA)
pediatric cancer survivors and peers without a history of serious illness on psychological …
pediatric cancer survivors and peers without a history of serious illness on psychological …
A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions
A Colver, H McConachie, A Le Couteur… - BMC medicine, 2018 - Springer
Background Most evidence about what works in transitional care comes from small studies
in single clinical specialties. We tested the hypothesis that exposures to nine recommended …
in single clinical specialties. We tested the hypothesis that exposures to nine recommended …
Hospital‐to‐school transition for children with chronic illness: Meeting the new challenges of an evolving health care system
Chronic illness is common and has a profound impact on the education of affected children.
A variety of approaches and programs to facilitate the transition from hospital to school for …
A variety of approaches and programs to facilitate the transition from hospital to school for …