Spiritual care in palliative care: a systematic review of the recent European literature

MJHE Gijsberts, AI Liefbroer, R Otten, E Olsman - Medical Sciences, 2019 - mdpi.com
Many studies on spiritual care in palliative care are performed in the US, leaving other
continents unexplored. The objective of this systematic review is to map the recent studies …

How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies

HRMM Schepens, J Van Puyenbroeck… - Journal of applied …, 2019 - Wiley Online Library
Background The increased life expectancy of people with intellectual disability intensifies
the need for age‐specific support. Research on effects of support strategies on quality of life …

The Nominal Group Technique (NGT) as a tool for facilitating pan-disability focus groups and as a new method for quantifying changes in qualitative data

J Olsen - International Journal of Qualitative Methods, 2019 - journals.sagepub.com
This article reaffirms the value and flexibility of the nominal group technique (NGT) when
conducting qualitative focus groups (QFGs). In the project that will be discussed, the …

[HTML][HTML] Advance care planning in palliative care for people with intellectual disabilities: a systematic review

H Voss, A Vogel, AMA Wagemans, AL Francke… - Journal of Pain and …, 2017 - Elsevier
Context Advance care planning (ACP) is defined as a person-centered, ongoing process of
communication that facilitates patients' understanding, reflection, and discussion of goals …

What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi‐perspective interview study

H Voss, A Vogel, AMA Wagemans… - Journal of Applied …, 2020 - Wiley Online Library
Background Advance care planning (ACP) is the process of discussing and documenting
wishes and preferences for future care. Research about ACP for people with intellectual …

Specialist palliative care staff's varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth …

B Foo, M Wiese, B Curryer, RJ Stancliffe… - Palliative …, 2021 - journals.sagepub.com
Background: The cognitive and communication challenges experienced by people with
intellectual disability present difficulties for health professionals, particularly in the face of …

Identifying end-of-life preferences among Chinese patients with cancer using the heart to heart card game

T Li, X Pei, X Chen, S Zhang - American Journal of Hospice …, 2021 - journals.sagepub.com
Background: Understanding the preferences for end-of-life (EOL) care is imperative in
providing quality care to patients with life-threatening illness. However, it is difficult for …

Last months of life of people with intellectual disabilities: a UK population‐based study of death and dying in intellectual disability community services

S Todd, J Bernal, J Shearn, R Worth… - Journal of Applied …, 2020 - Wiley Online Library
Background Population‐based data are presented on the nature of dying in intellectual
disability services. Methods A retrospective survey was conducted over 18 months with a …

Advance care planning in the palliative phase of people with intellectual disabilities: analysis of medical files and interviews

H Voss, A Vogel, AMA Wagemans… - Journal of …, 2019 - Wiley Online Library
Background Advance care planning (ACP) is a process in which professionals, patients and
their relatives discuss wishes and options for future care. ACP in the palliative phase …

Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta …

N Ashok, D Hughes, S Yardley - Palliative medicine, 2023 - journals.sagepub.com
Background: People with diagnoses of intellectual disability or serious mental illness have
higher mortality rates due to physical comorbidities; better understanding is needed to guide …