Epilepsy‐specific patient‐reported outcome measures of children's health‐related quality of life: A systematic review of measurement properties

H Crudgington, M Rogers, H Morris, P Gringras… - …, 2020 - Wiley Online Library
Objective To identify and appraise published evidence of the measurement properties for
epilepsy‐specific patient‐reported outcome measures (PROMs) of children's health‐related …

[HTML][HTML] A neuropsychological model for the pre-surgical evaluation of children with focal-onset epilepsy: An integrated approach

LM Gonzalez, JA Wrennall - Seizure, 2020 - Elsevier
This review explores the complexities of pre-surgical neuropsychological assessment for
children with focal-onset epilepsy. A model is proposed outlining a range of factors that …

A longitudinal cohort study of mediators of health‐related quality of life after pediatric epilepsy surgery or medical treatment

ML Smith, K Puka, KN Speechley, MA Ferro… - …, 2023 - Wiley Online Library
Objectives The purpose of this longitudinal cohort study was to examine the variables that
influence health‐related quality of life (HRQOL) after epilepsy surgery in children. We …

Neighborhood disadvantage and health-related quality of life in pediatric epilepsy

JA Chiang, T Tran, S Swami, E Shin, N Nussbaum… - Epilepsy & Behavior, 2023 - Elsevier
Introduction While several demographic and epilepsy-specific characteristics are associated
with diminished HRQoL in children and adolescents with epilepsy, prior investigations have …

Trajectory of health-related quality of life after pediatric epilepsy surgery

E Widjaja, K Puka, KN Speechley, MA Ferro… - JAMA network …, 2023 - jamanetwork.com
Importance Health-related quality of life (HRQOL) is regarded as a key outcome for
evaluating treatment efficacy. However, it is uncertain how HRQOL evolves after epilepsy …

Development and assessment of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐16)

SW Goodwin, MA Ferro, KN Speechley - Epilepsia, 2018 - Wiley Online Library
Objective The aim of this study was to develop and validate a brief version of the Quality of
Life in Childhood Epilepsy Questionnaire (QOLCE). A secondary aim was to compare the …

Trajectories of quality of life 10 years following a diagnosis of epilepsy in childhood

K Puka, MA Ferro, CS Camfield, SD Levin, ML Smith… - …, 2020 - Wiley Online Library
Objective This study estimated trajectories of health‐related quality of life (HRQOL) over a
10‐year period among children newly diagnosed with epilepsy. We also modeled the …

Pre-operative predictors of health-related quality of life two years after pediatric epilepsy surgery: A prospective cohort study

KV Rojulpote, ML Smith, K Puka, KN Speechley… - … : European Journal of …, 2023 - Elsevier
Purpose Seizure freedom is an important predictor of health-related quality of life (HRQOL)
after pediatric epilepsy surgery. This study aimed to identify the pre-operative predictors of …

Validation of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55 and QOLCE-16) for use by parents of young adults with childhood-onset epilepsy

K Puka, SW Goodwin, MA Ferro, ML Smith, E Widjaja… - Epilepsy & Behavior, 2020 - Elsevier
Objective The objective of the study was to validate the parent-proxy reported Quality of Life
in Childhood Epilepsy Questionnaire (QOLCE) in a sample of young adults with a history of …

Impact of resective epilepsy surgery on health-related quality of life in children with and without low intellectual ability

L Conway, E Widjaja, ML Smith - Epilepsy & Behavior, 2018 - Elsevier
Objective The current study examined pre-and postoperative health-related quality of life
(HRQL) across children with and without low intellectual ability. We also aimed to clarify the …