Transitioning to Adulthood: Pediatric Spinal Cord Injury Care and Beyond

J Stewart, KC Deane, K Zebracki - Physical Medicine and …, 2024 - pmr.theclinics.com
Given the advances in the management of pediatric-onset spinal cord injury (SCI), most
children with SCI will go on to live long lives. Successful transition to adulthood is a critical …

Parental entrustment of healthcare responsibilities to youth with chronic conditions: A concept analysis

L Pitts, PA Patrician, W Landier, T Kazmerski… - Journal of Pediatric …, 2024 - Elsevier
Purpose Chronic health conditions impact nearly 40% of children in the United States,
necessitating parents/caregivers to entrust healthcare responsibilities to youth aging into …

Social connectedness and the role of virtual reality: experiences and perceptions of people living with dementia and their caregivers

A Flynn, A Brennan, M Barry, S Redfern… - Disability and …, 2024 - Taylor & Francis
Purpose People living with dementia are often at increased risk of becoming socially
disconnected due to dementia-related challenges. In recent years, digital technology has …

A Multi-User Virtual Reality Social Connecting Space for People Living with Dementia and Their Support Persons: A Participatory Action Research Study

A Flynn, WQ Koh, G Reilly, A Brennan… - … Journal of Human …, 2024 - Taylor & Francis
Digital technologies such as virtual reality (VR) are increasingly designed and implemented
to support people living with dementia who are at risk of loneliness and/or social isolation …

Feasibility and Acceptability of a Codesigned Health Care Transition Intervention for Young People With Spinal Cord Injuries

EA Bray, A George, B Everett… - Topics in spinal …, 2023 - meridian.allenpress.com
Background Due in part to medical complications, adults with a pediatric onset spinal cord
injury (SCI) are at higher risk of experiencing dissatisfaction with life and lower perceived …

Empowering Lives: Navigating the Landscape of Down Syndrome Support in Saudi Arabia

S Parveen, A Ahmad, AA Reshi - Journal of Disability Research, 2024 - scienceopen.com
This study offers an in-depth analysis of Down syndrome (DS) in Saudi Arabia,
encompassing healthcare, societal integration, and policy frameworks. It assesses DS …

Supporting the transition of children and young people with a spinal cord injury from paediatric to adult healthcare services

EA Bray - 2023 - researchdirect.westernsydney.edu …
The seamless transition from the paediatric to the adult healthcare system, termed
healthcare transition, is a significant and critical factor in fostering independence and …