[HTML][HTML] Ethical, legal, and social implications of genomic medicine
EW Clayton - New England Journal of Medicine, 2003 - Mass Medical Soc
It is commonly believed that the use of an individual patient's genetic information should be
held to a slightly different legal standard than the use of general medical information. This …
held to a slightly different legal standard than the use of general medical information. This …
Research ethics and the challenge of whole-genome sequencing
AL McGuire, T Caulfield, MK Cho - Nature Reviews Genetics, 2008 - nature.com
The recent completion of the first two individual whole-genome sequences is a research
milestone. As personal genome research advances, investigators and international research …
milestone. As personal genome research advances, investigators and international research …
Genetic discrimination: international perspectives
M Otlowski, S Taylor, Y Bombard - Annual review of genomics …, 2012 - annualreviews.org
Genetic discrimination (GD) is a complex, multifaceted ethical, psychosocial, and legal
phenomenon. It is defined as the differential treatment of asymptomatic individuals or their …
phenomenon. It is defined as the differential treatment of asymptomatic individuals or their …
Ethical, legal and social implications of incorporating personalized medicine into healthcare
KB Brothers, MA Rothstein - Personalized medicine, 2015 - Taylor & Francis
As research focused on personalized medicine has developed over the past decade,
bioethics scholars have contemplated the ethical, legal and social implications of this type of …
bioethics scholars have contemplated the ethical, legal and social implications of this type of …
Looking beyond GINA: policy approaches to address genetic discrimination
Concerns about genetic discrimination (GD) often surface when discussing research and
innovation in genetics. Over recent decades, countries around the world have attempted to …
innovation in genetics. Over recent decades, countries around the world have attempted to …
[HTML][HTML] Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the …
DR Matalon, CJ Zepeda-Mendoza, M Aarabi… - Genetics in …, 2023 - Elsevier
Disclaimer: This statement is designed primarily as an educational resource for medical
geneticists and other clinicians to help them provide quality medical services. Adherence to …
geneticists and other clinicians to help them provide quality medical services. Adherence to …
[图书][B] Addiction neuroethics: The promises and perils of neuroscience research on addiction
Addiction is a significant health and social problem and one of the largest preventable
causes of disease globally. Neuroscience promises to revolutionise our ability to treat …
causes of disease globally. Neuroscience promises to revolutionise our ability to treat …
[HTML][HTML] Life insurance: genomic stratification and risk classification
Y Joly, H Burton, BM Knoppers, IN Feze… - European Journal of …, 2014 - nature.com
With the development and increasing accessibility of new genomic tools such as next-
generation sequencing, genome-wide association studies, and genomic stratification …
generation sequencing, genome-wide association studies, and genomic stratification …
Genetic discrimination in private insurance: global perspectives
Y Joly, M Braker, M Le Huynh - New genetics and society, 2010 - Taylor & Francis
In an era of personalized medicine rife with population databases and international
consortia, genetic discrimination is once again moving to the forefront of the genetics policy …
consortia, genetic discrimination is once again moving to the forefront of the genetics policy …
Genetic exceptionalism & legislative pragmatism
MA Rothstein - The Ethics of Public Health, Volumes I and II, 2018 - taylorfrancis.com
Can passing antidiscrimination laws ever be a bad idea? Yes, if broad policy reform is
abandoned in favor of gengtic-specific legislation. But in spite of its serious flaws, both in …
abandoned in favor of gengtic-specific legislation. But in spite of its serious flaws, both in …