Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body

A Werner-Lin, RF Shepherd, JL Young… - Social science & …, 2022 - Elsevier
Introduction Experiences of illness change the physical body and embodiments, or the ways
in which the world and the self are known through the body. When illness is anticipated …

How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship?“With Li‐Fraumeni syndrome, it's just an …

A Werner‐Lin, R Forbes Shepherd, CJ Rising… - Psycho …, 2023 - Wiley Online Library
Objectives Adolescents and young adult (AYA) cancer survivors face unique medical and
psychosocial sequalae, including chronic health conditions, late effects of treatment and fear …

Reproduction and genetic responsibility: an interpretive description of reproductive decision-making for young people with Li-Fraumeni Syndrome

R Forbes Shepherd, A Werner-Lin… - Qualitative Health …, 2022 - journals.sagepub.com
The reproductive decision-making of young people (aged 15–39 years) with Li-Fraumeni
syndrome (LFS), an early onset inherited cancer syndrome, has not been studied in depth …

A qualitative study to assess the psychological experiences and coping strategies of families affected with Li-Fraumeni syndrome in the Indian population

P Joshi, S Bhandari, A Tk, S Kaur, R Bhargava… - Rare …, 2023 - journals.sagepub.com
Background: Li-Fraumeni syndrome (LFS) is a rare autosomal dominant hereditary cancer
syndrome. Due to the high risk of occurrence of multiple cancers, families with LFS may …

Optimal care for people affected by cancer.

M Jefford - Australian Journal of General Practice, 2021 - search.ebscohost.com
The article presents the discussion on general practitioners (GP) playing an important role in
the care of cancer survivors. Topics include involving a combination of surgery, radiation …

Lived experience of people with cancer

M Jefford - Australian journal of general practice, 2021 - racgp.org.au
Australia has the highest per capita rate of cancer. In 2020, an estimated 145,000
Australians were diagnosed with cancer. 1 An estimated 48,000 Australians died from …