[HTML][HTML] Exploring the care needs of patients with advanced COPD: an overview of the literature

C Gardiner, M Gott, S Payne, N Small, S Barnes… - Respiratory …, 2010 - Elsevier
Chronic obstructive pulmonary disease (COPD) is a highly prevalent condition worldwide
and is associated with significant mortality. This paper gives an overview of the relevant …

[HTML][HTML] A review of the complex role of family caregivers as health team members and second-order patients

DW Sherman - Healthcare, 2019 - mdpi.com
In Palliative Care, the unit of care is the patient and their family. Although members of the
health care team often address the family caregiver's opinions and concerns, the focus of …

[HTML][HTML] The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives

L Downey, JR Curtis, WE Lafferty, JR Herting… - Journal of pain and …, 2010 - Elsevier
We used exploratory factor analysis within the confirmatory analysis framework, and data
provided by family members and friends of 205 decedents in Missoula, Montana, to …

District nurses' role in palliative care provision: a realist review

C Walshe, KA Luker - International journal of nursing studies, 2010 - Elsevier
OBJECTIVES: The aim of this review is to construct a detailed account of the role of the
district nurse (generalist registered nurse providing nursing care in primarily home settings) …

The use of two common palliative outcome measures in clinical care and research: a systematic review of POS and STAS

C Bausewein, C Le Grice, ST Simon… - Palliative …, 2011 - journals.sagepub.com
The Palliative Care Outcome Scale (POS) and the Support Team Assessment Schedule
(STAS) are outcome measures assessing quality of care in palliative care patients. This …

[HTML][HTML] Assessing agreement between terminally ill cancer patients' reports of their quality of life and family caregiver and palliative care physician proxy ratings

JM Jones, CJ McPherson, C Zimmermann… - Journal of pain and …, 2011 - Elsevier
CONTEXT: Proxy ratings, if valid, may provide an alternative approach to evaluating patient
quality of life (QoL) at the end of life. OBJECTIVES: To examine agreement between …

End-of-life experiences of nurses and physicians in the newborn intensive care unit

EG Epstein - Journal of Perinatology, 2008 - nature.com
Objective: To explore nurses' and physicians' end-of-life (EOL) experiences in the newborn
intensive care unit. Study Design: A hermeneutic phenomenology of health-care providers' …

[HTML][HTML] A pilot study of the experience of family caregivers of patients with advanced pancreatic cancer using a mixed methods approach

DW Sherman, DB McGuire, D Free… - Journal of pain and …, 2014 - Elsevier
Context Pancreatic cancer presents a wide spectrum of significant symptomatology. The
high symptom burden, coupled with a rapidly fatal diagnosis, limits preparation or time for …

[HTML][HTML] Dying in the hospital: what happens and what matters, according to bereaved relatives

FE Witkamp, L van Zuylen, G Borsboom… - Journal of pain and …, 2015 - Elsevier
Abstract Context Most deaths in Western countries occur in hospital, but little is known about
factors determining the quality of dying (QOD). Objectives The aim was to assess the QOD in …

Prognostic variables and scores identifying the end of life in COPD: a systematic review

LJE Smith, E Moore, I Ali, L Smeeth… - … journal of chronic …, 2017 - Taylor & Francis
Introduction COPD is a major cause of mortality, and the unpredictable trajectory of the
disease can bring challenges to end-of-life care. We aimed to investigate known prognostic …