Conducting research in psoriatic arthritis: the emerging role of patient research partners

N Goel - Rheumatology, 2020 - academic.oup.com
Since 2003, patients have become increasingly involved in research endeavours related to
psoriatic arthritis (PsA), progressing into a patient research partner (PRP) role. This paper …

[HTML][HTML] Engaging patients and the public in Health Research: experiences, perceptions and training needs among Manitoba health researchers

LK Crockett, C Shimmin, KDM Wittmeier… - Research involvement …, 2019 - Springer
Background The significance of patient and public engagement is increasingly recognized
in health research, demonstrated by explicit requirements for patient and public engagement …

[HTML][HTML] The value of involving patients and public in health services research and evaluation: a qualitative study

P Saini, SM Hassan, EK Morasae, M Goodall… - Research involvement …, 2021 - Springer
Abstract Background Public and Patient Involvement, Engagement and Participation
research encompasses working with patients/service users (people with a medical condition …

[HTML][HTML] Integration of stakeholder engagement from development to dissemination in genomic medicine research: approaches and outcomes from the CSER …

JM O'Daniel, S Ackerman, LR Desrosiers, S Rego… - Genetics in …, 2022 - Elsevier
Purpose There is a critical need for genomic medicine research that reflects and benefits
socioeconomically and ancestrally diverse populations. However, disparities in research …

[HTML][HTML] Patient engagement in health research: perspectives from patient participants

J Easley, R Wassersug, S Matthias, M Tompson… - Current …, 2023 - mdpi.com
Background and purpose: Over the past decade, patient engagement (PE) has emerged as
an important way to help improve the relevance, quality, and impact of health research …

Enhancing patient research partner engagement: Research in psoriatic arthritis

N Goel - Best Practice & Research Clinical Rheumatology, 2021 - Elsevier
The perspective from individuals with psoriatic arthritis (PsA) can be beneficial to PsA
research, increasing the likelihood that the results are meaningful and relevant to PsA …

[HTML][HTML] Patients' engagement in primary care research: a case study in a Canadian context

DK Bhati, M Fitzgerald, C Kendall… - Research Involvement and …, 2020 - Springer
Plain English summary Patient engagement in primary care research is an increasingly
common requirement, as it helps make research more relevant to patients and therefore …

Designing discrete choice experiments using a patient-oriented approach

M Aguiar, M Harrison, S Munro, T Burch… - The Patient-Patient …, 2021 - Springer
Patient-oriented research is a process whereby patients or caregivers are included as
research partners so that research focusses on topics that are priorities and lead to findings …

Capacity building and mentorship among pan-Canadian early career researchers in community-based primary health care

K Nicholson, R Ganann, S Bookey-Bassett… - Primary health care …, 2020 - cambridge.org
Aim: To describe activities and outcomes of a cross-team capacity building strategy that took
place over a five-year funding period within the broader context of 12 community-based …

Why and how to use patient-oriented research to promote translational research.

N Sunderji, E Nicholas Angl, J Polaha, C Gao - 2019 - psycnet.apa.org
Sunderji, N., Nicholas Angl, E., Polaha, J., & Gao, C.(2019). Why and how to use patient-
oriented research to promote translational research [Editorial]. Families, Systems, & Health …