Youth engagement in mental health research: a systematic review

E McCabe, M Amarbayan, S Rabi… - Health …, 2023 - Wiley Online Library
Introduction Patient engagement in youth mental health research has the potential to inform
research on the interventions, services and policies that will benefit youth. At present, there …

Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review

A Rouncefield-Swales, J Harris, B Carter, L Bray… - PloS one, 2021 - journals.plos.org
Background There has been an increasing interest in how children and young people can
be involved in patient and public involvement and engagement (PPIE) in health research …

Shifting from tokenism to meaningful adolescent participation in research for obesity prevention: a systematic scoping review

M Mandoh, J Redfern, S Mihrshahi, HL Cheng… - Frontiers in public …, 2021 - frontiersin.org
Background: Traditionally, adolescent participation in research has been tokenistic.
Adolescents are rarely afforded the opportunity to influence decision-making in research …

From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research

M Prebeg, M Patton, R Desai, M Smith… - The Lancet …, 2023 - thelancet.com
The value of involving people with lived experience in the research process (ie, patient
engagement) is increasingly being recognised within youth mental health research. The …

The INSCHOOL project: Showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people …

B Spencer, S Hugh-Jones, D Cottrell, S Pini - Research Involvement and …, 2023 - Springer
Background Evidence suggests resources and services benefit from being developed in
collaboration with the young people they aim to support. Despite this, patient and public …

Prevalence of patient partner authorship and acknowledgment in child health research publications: an umbrella review

S Vanderhout, DP Richards, N Butcher… - Journal of Clinical …, 2023 - Elsevier
Objectives Children and families are increasingly involved as equal partners in child health
research, however, considerations around authorship have received little attention and there …

The impact of patient and family engagement in child health research: a scoping review

SM Vanderhout, M Bhalla, A Van, DA Fergusson… - The Journal of …, 2023 - Elsevier
Objective To identify impacts of patient and family engagement in child health research on
the research process, research teams, and patient and family partners. Study design A …

Building a culture of engagement at a research centre for childhood disability

K Pozniak, F Buchanan, A Cross, J Crowson… - Research involvement …, 2021 - Springer
Background Engaging patients and family members as partners in research studies has
become a widespread practice in healthcare. However, relatively little has been …

Developing a more tailored approach to patient and public involvement with children and families in pediatric clinical research: lessons learned

J Preston, B Nafria, A Ohmer, S Gaillard… - … Innovation & Regulatory …, 2022 - Springer
Listening to, and acting on, the voices of children and families during clinical research and
innovation is fundamental to ensuring enhanced pediatric health care, medicines …

Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol

A Warraitch, D Bruce, M Lee, P Curran, Q Khraisha… - BMJ open, 2023 - bmjopen.bmj.com
Introduction A lack of awareness on how to engage adolescents in research has been
reported as one of the barriers to meaningful youth involvement in health research …