Youth engagement in mental health research: a systematic review
E McCabe, M Amarbayan, S Rabi… - Health …, 2023 - Wiley Online Library
Introduction Patient engagement in youth mental health research has the potential to inform
research on the interventions, services and policies that will benefit youth. At present, there …
research on the interventions, services and policies that will benefit youth. At present, there …
Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review
Background There has been an increasing interest in how children and young people can
be involved in patient and public involvement and engagement (PPIE) in health research …
be involved in patient and public involvement and engagement (PPIE) in health research …
Shifting from tokenism to meaningful adolescent participation in research for obesity prevention: a systematic scoping review
M Mandoh, J Redfern, S Mihrshahi, HL Cheng… - Frontiers in public …, 2021 - frontiersin.org
Background: Traditionally, adolescent participation in research has been tokenistic.
Adolescents are rarely afforded the opportunity to influence decision-making in research …
Adolescents are rarely afforded the opportunity to influence decision-making in research …
From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research
The value of involving people with lived experience in the research process (ie, patient
engagement) is increasingly being recognised within youth mental health research. The …
engagement) is increasingly being recognised within youth mental health research. The …
The INSCHOOL project: Showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people …
B Spencer, S Hugh-Jones, D Cottrell, S Pini - Research Involvement and …, 2023 - Springer
Background Evidence suggests resources and services benefit from being developed in
collaboration with the young people they aim to support. Despite this, patient and public …
collaboration with the young people they aim to support. Despite this, patient and public …
Prevalence of patient partner authorship and acknowledgment in child health research publications: an umbrella review
S Vanderhout, DP Richards, N Butcher… - Journal of Clinical …, 2023 - Elsevier
Objectives Children and families are increasingly involved as equal partners in child health
research, however, considerations around authorship have received little attention and there …
research, however, considerations around authorship have received little attention and there …
The impact of patient and family engagement in child health research: a scoping review
SM Vanderhout, M Bhalla, A Van, DA Fergusson… - The Journal of …, 2023 - Elsevier
Objective To identify impacts of patient and family engagement in child health research on
the research process, research teams, and patient and family partners. Study design A …
the research process, research teams, and patient and family partners. Study design A …
Building a culture of engagement at a research centre for childhood disability
Background Engaging patients and family members as partners in research studies has
become a widespread practice in healthcare. However, relatively little has been …
become a widespread practice in healthcare. However, relatively little has been …
Developing a more tailored approach to patient and public involvement with children and families in pediatric clinical research: lessons learned
J Preston, B Nafria, A Ohmer, S Gaillard… - … Innovation & Regulatory …, 2022 - Springer
Listening to, and acting on, the voices of children and families during clinical research and
innovation is fundamental to ensuring enhanced pediatric health care, medicines …
innovation is fundamental to ensuring enhanced pediatric health care, medicines …
Involving adolescents in the design, implementation, evaluation and dissemination of health research: an umbrella review protocol
A Warraitch, D Bruce, M Lee, P Curran, Q Khraisha… - BMJ open, 2023 - bmjopen.bmj.com
Introduction A lack of awareness on how to engage adolescents in research has been
reported as one of the barriers to meaningful youth involvement in health research …
reported as one of the barriers to meaningful youth involvement in health research …