“We are exhausted, worn out, and broken”: Understanding the impact of service satisfaction on caregiver well‐being
VC Fong, J McLaughlin, M Schneider - Autism Research, 2023 - Wiley Online Library
Few studies exist that have examined the impact of service‐related factors and system‐level
disruptions (ie, the pandemic) on families of autistic children in Canada using large sample …
disruptions (ie, the pandemic) on families of autistic children in Canada using large sample …
Associations among family burden, optimism, services received and unmet need within families of children with ASD
Research has identified variation in the number of services received and unmet service
needs among parents of children with ASD. We sought to explore the relationship among …
needs among parents of children with ASD. We sought to explore the relationship among …
[HTML][HTML] The impact of a brief home-based intervention on families with a child with autism spectrum disorder
A Mullan, K Boyd, R McConkey - Journal of Developmental and Physical …, 2021 - Springer
A brief intervention is described and evaluated that aimed to build and strengthen
relationships for families of children diagnosed with ASD aged 12 and under. A particular …
relationships for families of children diagnosed with ASD aged 12 and under. A particular …
'I am so fearful for him': a mixed-methods exploration of stress among caregivers of Black children with autism
Parenting stress is correlated with negative child and parent outcomes. Accurate parenting
stress assessments are critical to inform appropriate service delivery. This study used mixed …
stress assessments are critical to inform appropriate service delivery. This study used mixed …
Siblings of children with autism spectrum disorders: social support and family quality of life
D Garrido, G Carballo, R Garcia-Retamero - Quality of Life Research, 2020 - Springer
Purpose Autism spectrum disorder (ASD) often has a significant impact on all family
members, including parents and siblings of the person who suffers the disorder. This case …
members, including parents and siblings of the person who suffers the disorder. This case …
Stress, coping, and quality of life in families with a child with ASD living regionally
Objectives The present study aimed to explore whether regionality is associated with
differing stress levels, coping, QOL and daily routines for parents and families of a child with …
differing stress levels, coping, QOL and daily routines for parents and families of a child with …
Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers
Background Having a child on the autism spectrum (AS) is known to impact caregiver quality
of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is …
of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is …
Examining daily impact of mood and quality of social support for caregivers of children on the autism spectrum
Background Caregivers of children on the autism spectrum often report elevated levels of
perceived stress which may lead to poorer ratings of quality of life (QOL), though this relation …
perceived stress which may lead to poorer ratings of quality of life (QOL), though this relation …
[HTML][HTML] Health-related quality of life and related factors among primary caregivers of children with disabilities in Shanghai, China: A cross-sectional study
C Xia, M Sun, X Li, C Lu, X Gao, J Lu… - International journal of …, 2020 - mdpi.com
Health-related quality of life (HRQOL) of caregivers of children with disabilities (CWD) is
important for both children's rehabilitation and caregivers' life, but the corresponding …
important for both children's rehabilitation and caregivers' life, but the corresponding …
Developmental coordination disorder: the impact on the family
MAM Cleaton, PK Lorgelly, A Kirby - Quality of Life Research, 2019 - Springer
Purpose Developmental coordination disorder (DCD) is a neurodevelopmental disorder with
an estimated prevalence of 2–6% in school-aged children. Children with DCD score lower in …
an estimated prevalence of 2–6% in school-aged children. Children with DCD score lower in …