“We are exhausted, worn out, and broken”: Understanding the impact of service satisfaction on caregiver well‐being

VC Fong, J McLaughlin, M Schneider - Autism Research, 2023 - Wiley Online Library
Few studies exist that have examined the impact of service‐related factors and system‐level
disruptions (ie, the pandemic) on families of autistic children in Canada using large sample …

Associations among family burden, optimism, services received and unmet need within families of children with ASD

K Lopez, J Reed, S Magaña - Children and Youth Services Review, 2019 - Elsevier
Research has identified variation in the number of services received and unmet service
needs among parents of children with ASD. We sought to explore the relationship among …

[HTML][HTML] The impact of a brief home-based intervention on families with a child with autism spectrum disorder

A Mullan, K Boyd, R McConkey - Journal of Developmental and Physical …, 2021 - Springer
A brief intervention is described and evaluated that aimed to build and strengthen
relationships for families of children diagnosed with ASD aged 12 and under. A particular …

'I am so fearful for him': a mixed-methods exploration of stress among caregivers of Black children with autism

S Dababnah, I Kim, WE Shaia - International Journal of …, 2022 - Taylor & Francis
Parenting stress is correlated with negative child and parent outcomes. Accurate parenting
stress assessments are critical to inform appropriate service delivery. This study used mixed …

Siblings of children with autism spectrum disorders: social support and family quality of life

D Garrido, G Carballo, R Garcia-Retamero - Quality of Life Research, 2020 - Springer
Purpose Autism spectrum disorder (ASD) often has a significant impact on all family
members, including parents and siblings of the person who suffers the disorder. This case …

Stress, coping, and quality of life in families with a child with ASD living regionally

D Parsons, R Cordier, H Lee, T Falkmer… - Journal of Child and Family …, 2020 - Springer
Objectives The present study aimed to explore whether regionality is associated with
differing stress levels, coping, QOL and daily routines for parents and families of a child with …

Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers

S Vaz, A Thomson, B Cuomo, T Falkmer… - Research in Autism …, 2021 - Elsevier
Background Having a child on the autism spectrum (AS) is known to impact caregiver quality
of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is …

Examining daily impact of mood and quality of social support for caregivers of children on the autism spectrum

M Robeson, K Hayes, KR Shekouh, E Ahlich… - Research in Autism …, 2024 - Elsevier
Background Caregivers of children on the autism spectrum often report elevated levels of
perceived stress which may lead to poorer ratings of quality of life (QOL), though this relation …

[HTML][HTML] Health-related quality of life and related factors among primary caregivers of children with disabilities in Shanghai, China: A cross-sectional study

C Xia, M Sun, X Li, C Lu, X Gao, J Lu… - International journal of …, 2020 - mdpi.com
Health-related quality of life (HRQOL) of caregivers of children with disabilities (CWD) is
important for both children's rehabilitation and caregivers' life, but the corresponding …

Developmental coordination disorder: the impact on the family

MAM Cleaton, PK Lorgelly, A Kirby - Quality of Life Research, 2019 - Springer
Purpose Developmental coordination disorder (DCD) is a neurodevelopmental disorder with
an estimated prevalence of 2–6% in school-aged children. Children with DCD score lower in …