Palliative care across the life span for children with heart disease: a scientific statement from the American Heart Association
ED Blume, R Kirsch, MK Cousino… - … Quality and Outcomes, 2023 - Am Heart Assoc
Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …
of primary and subspecialty palliative care in pediatric congenital and acquired heart …
Parent-provider communication in hospitalized children with advanced heart disease
MK Miller, ED Blume, C Samsel, E Elia, DW Brown… - Pediatric …, 2022 - Springer
Communication between parents and providers of children with cardiac disease is essential
to parental decision-making. This study explored how parents of hospitalized children with …
to parental decision-making. This study explored how parents of hospitalized children with …
Communication challenges: perioperative risks and care directives
V Habet, SA Teele - Current Opinion in Cardiology, 2023 - journals.lww.com
Clinician discomfort with communication skills and conveying uncertainty in prognosis are
two major areas for future research. On the basis of the literature to date, the focus should be …
two major areas for future research. On the basis of the literature to date, the focus should be …
American Heart Association's Children's Strategically Focused Research Network Experience
C Sable, JS Li, M Tristani‐Firouzi, A Fagerlin, RM Silver… - 2023 - Am Heart Assoc
The American Heart Association's Strategically Focused Children's Research Network
started in July 2017 with 4 unique programs at Children's National Hospital in Washington …
started in July 2017 with 4 unique programs at Children's National Hospital in Washington …
Parents' Psychological and Decision-Making Outcomes following Prenatal Diagnosis with Complex Congenital Heart Defect: An Exploratory Study
A Thorpe, RK Delaney, NM Pinto… - MDM Policy & …, 2023 - journals.sagepub.com
Background. Parents with a fetus diagnosed with a complex congenital heart defect (CHD)
are at high risk of negative psychological outcomes. Purpose. To explore whether parents' …
are at high risk of negative psychological outcomes. Purpose. To explore whether parents' …
Study protocol for a randomised clinical trial of a decision aid and values clarification method for parents of a fetus or neonate diagnosed with a life-threatening …
RK Delaney, NM Pinto, EM Ozanne, LA Stark… - BMJ open, 2021 - bmjopen.bmj.com
Introduction Parents who receive the diagnosis of a life-threatening, complex heart defect in
their fetus or neonate face a difficult choice between pursuing termination (for fetal …
their fetus or neonate face a difficult choice between pursuing termination (for fetal …
[HTML][HTML] Protocol: Study protocol for a randomised clinical trial of a decision aid and values clarification method for parents of a fetus or neonate diagnosed with a life …
RK Delaney, NM Pinto, EM Ozanne, LA Stark… - BMJ Open, 2021 - ncbi.nlm.nih.gov
Introduction Parents who receive the diagnosis of a lifethreatening, complex heart defect in
their fetus or neonate face a difficult choice between pursuing termination (for fetal …
their fetus or neonate face a difficult choice between pursuing termination (for fetal …