Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

HM Scott, D Braybrook, D Harðardóttir… - Health and Quality of …, 2023 - Springer
Background Person-centred outcome measures (PCOMs) are commonly used in routine
adult healthcare to measure and improve outcomes, but less attention has been paid to …

Pediatric palliative care: insights into assessment tools and review instruments

S Papa, A Mercante, L Giacomelli, F Benini - Children, 2023 - mdpi.com
The proper assessment of needs and outcomes in pediatric palliative care (PPC) is
imperative to ensure the best possible service to patients and families. However, given the …

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

L Coombes, D Braybrook, A Roach, H Scott… - European journal of …, 2022 - Springer
This study aims to identify the symptoms, concerns, and care priorities of children with life-
limiting conditions and their families. A semi-structured qualitative interview study was …

Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework

N Salins, K Rao, A Damani, S Hughes, N Preston - BMC Palliative Care, 2024 - Springer
Background Globally, children with cancer often experience delays in palliative care referral
or are infrequently referred. Therefore, we conducted a qualitative study to gain insight from …

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's …

L Coombes, D Harðardóttir, D Braybrook… - Palliative …, 2023 - journals.sagepub.com
Background: There is no validated outcome measure for use in children's palliative care
outside sub-Saharan Africa. Stakeholders must be involved in the development of such …

[HTML][HTML] Improvement and implementation of a national individual care plan in paediatric palliative care: a study protocol

CY Joren, MC Kars, LCM Kremer, H Rippen… - BMJ paediatrics …, 2023 - ncbi.nlm.nih.gov
Introduction Paediatric palliative care (PPC) is care for children with life-threatening or life-
limiting conditions, and can involve complex high-tech care, which can last for months or …

Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe …

S Pelke, J Wager, BB Claus, B Zernikow… - Palliative …, 2021 - journals.sagepub.com
Background: Comprehensive outcome measurement in pediatric palliative care focusing on
the entire unit of care, that is, the affected child and its family, is crucial to depict treatment …

Validation of the FACETS-OF-PPC as an outcome measure for children with severe neurological impairment and their families—a multicenter prospective longitudinal …

S Pelke, J Wager, BB Claus, K Stening, B Zernikow… - Children, 2021 - mdpi.com
Outcome measurement in pediatric palliative care (PPC) is receiving increasing attention.
The FACETS-OF-PPC, a multidimensional outcome measure for children with severe …

Crisis Management Strategies for Sustaining Organizations During a Crisis

P Payton - 2021 - search.proquest.com
Public relations directors often lack crisis management strategies to maintain an
organization's reputation following a crisis to ensure continued profitability. Public relations …

Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review

H Holmen, A Winger, SA Steindal, K Riiser, C Castor… - BMC Palliative Care, 2023 - Springer
Background Measuring outcomes facilitates evaluation of palliative services for children,
adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) …