Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review
Background Person-centred outcome measures (PCOMs) are commonly used in routine
adult healthcare to measure and improve outcomes, but less attention has been paid to …
adult healthcare to measure and improve outcomes, but less attention has been paid to …
Pediatric palliative care: insights into assessment tools and review instruments
S Papa, A Mercante, L Giacomelli, F Benini - Children, 2023 - mdpi.com
The proper assessment of needs and outcomes in pediatric palliative care (PPC) is
imperative to ensure the best possible service to patients and families. However, given the …
imperative to ensure the best possible service to patients and families. However, given the …
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study
This study aims to identify the symptoms, concerns, and care priorities of children with life-
limiting conditions and their families. A semi-structured qualitative interview study was …
limiting conditions and their families. A semi-structured qualitative interview study was …
Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework
Background Globally, children with cancer often experience delays in palliative care referral
or are infrequently referred. Therefore, we conducted a qualitative study to gain insight from …
or are infrequently referred. Therefore, we conducted a qualitative study to gain insight from …
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's …
L Coombes, D Harðardóttir, D Braybrook… - Palliative …, 2023 - journals.sagepub.com
Background: There is no validated outcome measure for use in children's palliative care
outside sub-Saharan Africa. Stakeholders must be involved in the development of such …
outside sub-Saharan Africa. Stakeholders must be involved in the development of such …
[HTML][HTML] Improvement and implementation of a national individual care plan in paediatric palliative care: a study protocol
CY Joren, MC Kars, LCM Kremer, H Rippen… - BMJ paediatrics …, 2023 - ncbi.nlm.nih.gov
Introduction Paediatric palliative care (PPC) is care for children with life-threatening or life-
limiting conditions, and can involve complex high-tech care, which can last for months or …
limiting conditions, and can involve complex high-tech care, which can last for months or …
Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe …
S Pelke, J Wager, BB Claus, B Zernikow… - Palliative …, 2021 - journals.sagepub.com
Background: Comprehensive outcome measurement in pediatric palliative care focusing on
the entire unit of care, that is, the affected child and its family, is crucial to depict treatment …
the entire unit of care, that is, the affected child and its family, is crucial to depict treatment …
Validation of the FACETS-OF-PPC as an outcome measure for children with severe neurological impairment and their families—a multicenter prospective longitudinal …
S Pelke, J Wager, BB Claus, K Stening, B Zernikow… - Children, 2021 - mdpi.com
Outcome measurement in pediatric palliative care (PPC) is receiving increasing attention.
The FACETS-OF-PPC, a multidimensional outcome measure for children with severe …
The FACETS-OF-PPC, a multidimensional outcome measure for children with severe …
Crisis Management Strategies for Sustaining Organizations During a Crisis
P Payton - 2021 - search.proquest.com
Public relations directors often lack crisis management strategies to maintain an
organization's reputation following a crisis to ensure continued profitability. Public relations …
organization's reputation following a crisis to ensure continued profitability. Public relations …
Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review
Background Measuring outcomes facilitates evaluation of palliative services for children,
adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) …
adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) …