[HTML][HTML] Parents' experiences of initiation of paediatric advance care planning discussions: a qualitative study

K Carr, F Hasson, S McIlfatrick, J Downing - European journal of pediatrics, 2022 - Springer
Advance care planning enables parents to discuss their goal and wishes for the future
treatment and care of their life-limited or life-threatened child. Whilst research has identified …

Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care

S Ekberg, A Herbert, K Johns, G Tarrant… - Palliative …, 2020 - journals.sagepub.com
Background: Effective communication is a cornerstone of quality paediatric palliative care.
Families report struggling, however, to know what to discuss, with whom, and when …

The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study

K Ekberg, L Weinglass, S Ekberg, S Danby… - Palliative …, 2020 - journals.sagepub.com
Background: The importance of caring for children with complex and serious conditions
means that paediatric palliative care must continue during pandemics. The recent pandemic …

End of life communication among caregivers of children with cancer: A qualitative approach to understanding support desired by families

AE Kenney, SZ Bedoya, CA Gerhardt… - … & supportive care, 2021 - cambridge.org
ObjectivesClinicians and parents are encouraged to have open and honest communication
about end of life with children with cancer, yet there remains limited research in this area …

Inviting the patient to talk about a conversation they had with another healthcare practitioner: A way of promoting discussion about disease progression and end of life …

M Pino, L Jenkins - Health Communication, 2024 - Taylor & Francis
Discussing disease progression is a core task in palliative care. This is especially important
when there are indications that a patient considers their death as less imminent than the …

[HTML][HTML] “Doing being a good parent” in the pediatric clinic: Parents' knowledge displays in advice requests on infants' everyday care

F Ranzani - Social Science & Medicine, 2024 - Elsevier
Parents and pediatricians play pivotal roles in promoting a nurturing environment for
children's growth and development, especially during the critical first thousand days of life …

Family meetings in paediatric palliative care: an integrative review

N Bradford, M Rolfe, S Ekberg, G Mitchell… - BMJ Supportive & …, 2021 - spcare.bmj.com
Objective Our aim was to synthesise the available evidence surrounding the structure,
processes and outcomes of family meetings in the paediatric palliative care literature …

Managing understandings of palliative care as more than care immediately before death: Evidence from observational analysis of consultations

H Sansone, S Ekberg, S Lord, J Stevenson… - Health …, 2024 - Wiley Online Library
Background Evidence suggests that public, and some professional, understandings of
palliative care are limited to care provided immediately before death, which contrasts …

[HTML][HTML] Application of Dance Movement Therapy to Life-Death Education of College Students Under Educational Psychology

L Yang, F Li - Frontiers in Psychology, 2022 - frontiersin.org
The present work aims to efficiently carry out life-death education (LDE) for college students,
improve their psychological problems, and reduce suicide accidents by combining LDE with …

[PDF][PDF] Moving towards (and away from) possible discussions about disease progression and end of life: Some emergent outcomes of companions' actions in palliative …

M Pino, V Land, E Hoey - Social Interaction. Video-Based …, 2024 - openaccess.city.ac.uk
The article examines a corpus of palliative care interactions recorded in a large UK hospice.
It focuses on a collection of patient possible allusions to disease progression and end of life …