Palliative care for family caregivers

S Alam, B Hannon, C Zimmermann - Journal of Clinical Oncology, 2020 - ascopubs.org
Family caregivers provide substantial care for patients with advanced cancer, while suffering
from hidden morbidity and unmet needs. The objectives of this review were to examine risk …

Use of patient-reported data within the acute healthcare context: a scoping review

K Kynoch, M Ameen, MA Ramis, H Khalil - International Journal of …, 2022 - mdpi.com
Patient-reported outcome measures (PROMs), patient-reported experience measures
(PREMs) and patient satisfaction surveys provide important information on how care can be …

Measuring the quality of patient-centered care: why patient-reported measures are critical to reliable assessment

F Tzelepis, RW Sanson-Fisher, AC Zucca… - Patient preference …, 2015 - Taylor & Francis
Purpose The Institute of Medicine (IOM) identified patient-centeredness as crucial to quality
health care. The IOM endorsed six patient-centeredness dimensions that stipulated that care …

[HTML][HTML] Impact of early palliative care on caregivers of patients with advanced cancer: cluster randomised trial

J McDonald, N Swami, B Hannon, C Lo, A Pope… - Annals of …, 2017 - Elsevier
Background Early palliative care improves the quality of life (QoL) and satisfaction with care
of patients with advanced cancer, but little is known about its effect on caregivers. Here, we …

Supporting carers: health care professionals in need of system improvements and education-a qualitative study

I Røen, H Stifoss-Hanssen, G Grande, S Kaasa… - BMC palliative …, 2019 - Springer
Background Health care professionals should prevent and relieve suffering in carers of
patients with advanced cancer. Despite known positive effects of systematic carer support …

Shared decision-making in older patients with colorectal or pancreatic cancer: Determinants of patients' and observers' perceptions

NH Geessink, EH Ofstad, MGMO Rikkert… - Patient education and …, 2018 - Elsevier
Objective To identify determinants of older patients' perceptions of involvement in decision-
making on colorectal (CRC) or pancreatic cancer (PC) treatment, and to compare these with …

Shared decision‐making in routine breast cancer care in Germany—a cross‐sectional study

S Feiten, I Scholl, J Dünnebacke, M Schmidt… - Psycho …, 2022 - Wiley Online Library
Objective Many preference‐sensitive decisions have to be made in breast cancer care and
little is known about the decision‐making processes between breast cancer patients and the …

Psychometric properties of carer-reported outcome measures in palliative care: a systematic review

CTJ Michels, M Boulton, A Adams, B Wee… - Palliative …, 2016 - journals.sagepub.com
Background: Informal carers face many challenges in caring for patients with palliative care
needs. Selecting suitable valid and reliable outcome measures to determine the impact of …

Satisfaction with care of hospitalised patients with advanced cancer in the Netherlands

M Engel, A Brinkman‐Stoppelenburg… - European journal of …, 2018 - Wiley Online Library
We aimed to assess the level of satisfaction with hospital care of patients with advanced
cancer and its association with quality of life and other patient characteristics. Eligible …

Supporting family caregivers of advanced cancer patients: a focus group study

R Nissim, S Hales, C Zimmermann, A Deckert… - Family …, 2017 - Wiley Online Library
Objective As the first stage in developing an intervention for family caregivers of individuals
with advanced cancer, we conducted a focus group study to understand their needs …