Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta …

N Ashok, D Hughes, S Yardley - Palliative Medicine, 2023 - journals.sagepub.com
Background: People with diagnoses of intellectual disability or serious mental illness have
higher mortality rates due to physical comorbidities; better understanding is needed to guide …

Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences

R Couvrette, É Milot, G Fortin - Journal of Social Work in End-of …, 2024 - Taylor & Francis
In developed countries, there has been an increase in the longevity of adults with intellectual
disabilities. In the later stages of their lives, people with intellectual disability have specific …

Improvement of palliative care for people with intellectual disabilities: A multi‐site evaluation

AJE De Veer, H Voss, AL Francke… - Journal of Applied …, 2024 - Wiley Online Library
Background To improve the quality of palliative care, six evidence‐based tools were
implemented in 10 care services specialised in care for people with intellectual disabilities …

End-of-life issues and support needs of people with profound intellectual and multiple disability

H Voss, J Watson, MJ Bloomer - End of life and people with intellectual and …, 2022 - Springer
Throughout life people with profound intellectual and multiple disability (PIMD) are likely to
experience multiple complex and life-threatening conditions, creating a need for decision …

[图书][B] Learning Disability Nursing: Developing Professional Practice

R Northway, P Hopes - 2022 - books.google.com
Explores all aspects of professional development in learning disability nursing from the
foundations to advanced practice. Key themes running through the book include the …

How people with intellectual disability are dying and implications for quality care

J Bernal, MY Wiese, S Todd - End of Life and People with Intellectual and …, 2022 - Springer
The characteristics of quality end-of-life care for people with intellectual disability are
becoming increasingly clear. The research also shows the urgent and growing need for …

Navigating End-of-Life Needs for a Person With Intellectual Disabilities and Their Caregivers

CM Moore, J Kates - Journal of Hospice & Palliative Nursing, 2022 - journals.lww.com
People with intellectual disabilities (IDs) are living longer, with many experiencing significant
barriers to accessing palliative care and hospice services. Families, caregivers, and direct …

[HTML][HTML] “What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”: exploring care relationships at the end of life in …

P Jacobs, E Quayle… - … Journal of Care …, 2023 - bristoluniversitypressdigital.com
Old age is still an under-researched stage in the lives of people with a learning disability.
Providing support to people towards the end of their lives can be challenging for services …

Improving palliative care for people with intellectual disabilities: communication is key

MJ Bloomer, J Watson - Palliative Medicine, 2021 - journals.sagepub.com
Improving palliative care for people with intellectual disabilities: Communication is key - Melissa J
Bloomer, Joanne Watson, 2022 Skip to main content Intended for healthcare professionals Sage …

End of Life Care for People with an Intellectual Disability a Qualitative Exploration of Staff Carers' Experiences

M McCarron, P McCallion, E Burke, F Timmins - 2021 - researchsquare.com
Background: Although people with intellectual disability are increasingly living longer and
experiencing high levels of multiple co-morbidity, palliative care has received limited …