The ethical, legal, and social implications of genomics and disability: Findings from a scoping review and their human rights implications

M Vassos, R Faragher, K Nankervis, R Breedt… - Advances in …, 2024 - Springer
Objectives Genomic advancements affect people with disabilities. This paper presents the
findings of a scoping literature review on the ethical, legal, and social implications (ELSI) of …

Changing the medical model of disability to the normalization model of disability: Clarifying the past to create a new future direction

Z Zaks - Disability & Society, 2023 - Taylor & Francis
The medical model of disability describes a widespread approach to disability common
since the 1800s that views disabilities of all sorts as abnormalities that need to be cured or …

[HTML][HTML] Parents' views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study

K Kruithof, E Olsman, A Nieuwenhuijse… - Research in …, 2022 - Elsevier
Background The increased life expectancy of persons with profound intellectual and multiple
disabilities (PIMD) raises questions regarding the medical decisions related to life and …

Rights are necessary but insufficient for the achievement of the full inclusion of people with intellectual and developmental disabilities

TR Parmenter - Advances in Neurodevelopmental Disorders, 2024 - Springer
Objectives Two forces which are in juxtaposition have been impacting upon the
achievement of full inclusion and emancipation of people with intellectual and related …

Where is disability in global public health?

G Krahn - Oxford Research Encyclopedia of Global Public Health, 2021 - oxfordre.com
Accounting for about 15% of the world's population, persons with disabilities constitute a
critical population. Despite a substantial knowledge base in disability and public health …

Public health ethics and disability: Centering disability justice

B Gaventa, D Stahl, K McDonald - Public health perspectives on disability …, 2021 - Springer
The inclusion of disability as an important and far-reaching social factor, and disability
justice as part of any framework of public health ethics, advances successful approaches to …

Lives not worth living in modern euthanasia regimes

SYH Kim - Journal of policy and practice in intellectual …, 2019 - Wiley Online Library
Abstract The authors of “The Quiet Progress of the New Eugenics”(QPNE) assert that some
current practices, such as euthanasia and/or assisted suicide (EAS) for disabled newborns …

[图书][B] Toward a moral horizon: Nursing ethics for leadership and practice

R Starzomski, JL Storch, P Rodney - 2023 - dspace.library.uvic.ca
This third edition of Toward a Moral Horizon: Nursing Ethics for Leadership and Practice will
assist nurses and all health care providers to take up the challenge of embedding ethics in …

Limits on quality of life: Who has the answer?

A Coppus, J van Berkel - Journal of Policy and Practice in …, 2024 - Wiley Online Library
Taking care of persons with intellectual and multiple disabilities (IMD), especially when
vulnerability and medical intervention increase, can lead to the question: to what extent is …

Assisted life before assisted death: disability discomfort regarding MAID

T Stainton - Medical assistance in dying (MAID) in Canada: key …, 2023 - Springer
This chapter considers the vulnerability of disabled persons within Canada's Medical
Assistance in Dying regime. It briefly outlines the history of disabled persons opposition and …