[HTML][HTML] Caregivers' experiences of having a child with cerebral palsy. A meta-synthesis

MD Dlamini, YJ Chang, TTB Nguyen - Journal of Pediatric Nursing, 2023 - Elsevier
Aim To synthesize qualitative research findings of caregiver experiences and challenges in
caring for and raising a child with cerebral palsy. Design A systematic review and meta …

Reflecting before, during, and after the heat of the moment: A review of four approaches for supporting health staff to manage stressful events

C Delany, S Jones, J Sokol, L Gillam… - Journal of Bioethical …, 2021 - Springer
Being a healthcare professional in both paediatric and adult hospitals will mean being
exposed to human tragedies and stressful events involving conflict, misunderstanding, and …

[HTML][HTML] Changing the culture of care for children and adolescents with functional neurological disorder

K Kozlowska, T Sawchuk, JL Waugh… - Epilepsy & behavior …, 2021 - Elsevier
As members of a multidisciplinary team of professionals who treat children and adolescents
with functional neurological (conversion) disorder (FND), we highlight the pressing need to …

[HTML][HTML] Ethical dilemmas posed by mobile health and machine learning in psychiatry research

NC Jacobson, KH Bentley, A Walton… - Bulletin of the World …, 2020 - ncbi.nlm.nih.gov
The application of digital technology to psychiatry research is rapidly leading to new
discoveries and capabilities in the field of mobile health. However, the increase in …

Australian children and adolescents with gender dysphoria: Clinical presentations and challenges experienced by a multidisciplinary team and gender service

K Kozlowska, G McClure, C Chudleigh… - Human …, 2021 - journals.sagepub.com
This prospective study examines the clinical characteristics of children (n= 79; 8.42–15.92
years old; 33 biological males and 46 biological females) presenting to a newly established …

Ethical aspects of artificially administered nutrition and hydration: an ASPEN position paper

DB Schwartz, A Barrocas, MG Annetta… - Nutrition in clinical …, 2021 - Wiley Online Library
Abstract The American Society for Parenteral and Enteral Nutrition (ASPEN) Position Paper
focus is on applying the 4 ethical principles for clinician's decision‐making in the use of …

A novel peer-directed curriculum to enhance medical ethics training for medical students: a single-institution experience

BT Sullivan, MT DeFoor, B Hwang… - Journal of medical …, 2020 - journals.sagepub.com
Background: The best pedagogical approach to teaching medical ethics is unknown and
widely variable across medical school curricula in the United States. Active learning …

“It is very hard to just accept this”–a qualitative study of palliative care teams' ethical reasoning when patients do not want information

J Björk - BMC Palliative Care, 2024 - Springer
Background The aim of this study was to explore how palliative care staff reason about the
autonomy challenge that arises when a patient who has first said he wants full information …

Teaching ethics in psychiatry: Time to reset

S Scher, K Kozlowska - Harvard Review of Psychiatry, 2020 - journals.lww.com
When the first author (SS, years ago) taught ethics clinically in Harvard-affiliated hospitals,
he encountered an oddity about how people stored “ethical” information. If he asked doctors …

The need for learning bioethics and law for biology students

AH Chan, BA Whitton, GYS Chan - Journal of Biological Education, 2022 - Taylor & Francis
Although the creation in 2018 of a pair of genome-edited HIV-resistant twins in China
caused widespread condemnation, we question whether the law and ethics relevant to such …