Advances in omics and specifically genomic technologies are increasingly transforming rare
disease diagnosis. However, the benefits of these advances are disproportionately …

The field of genomics has benefited greatly from its “openness” approach to data sharing.
However, with the increasing volume of sequence information being created and stored and …

After the atomic bombing at the end of World War II, anxieties about survival in the nuclear
age led scientists to begin stockpiling and freezing hundreds of thousands of blood samples …

PURPOSE This investigation was undertaken to define the barriers to Indigenous peoples
participating in biobanking and genomic research. METHODS A literature review was …

Participation in biobanks tends to favor certain groups—white, middle-class, more highly-
educated—often to the exclusion of others, such as indigenous people, the socially …

Before the advent of forensic DNA profiling, forensic techniques such as fingerprint
examination and blood type comparison were used in the identification of suspects. DNA …

Dynamic Consent (DC) is both a model and a specific web-based tool that enables clear,
granular communication and recording of participant consent choices over time. The DC …

The willingness to donate human biological material for research purposes is shaped by
socio-cultural factors; however, there is a lack of studies analysing the social perception of …

While biobanking is expanding globally, the empirical evidence concerning the impact of
religion on future healthcare professionals' awareness and willingness to donate …

In health and medical research, guidelines are a set of statements and recommendations,
whereby experts or stakeholders assess published literature to generate practical advice for …