From protection of privacy to control of data streams: A focus group study on biobanks in the information society

K Snell, J Starkbaum, G Lauß, A Vermeer… - Public Health …, 2012 - karger.com
Most people in Europe do not know what biobanks are. In this study, public perceptions of
biobanks and collection of genetic and health data were analyzed in relation to other …

[图书][B] Ethical issues of human genetic databases: a challenge to classical health research ethics?

B Elger - 2016 - taylorfrancis.com
Following the boom in population databases in recent years there has been sustained and
intense international debate about political processes and legal and ethical issues …

[PDF][PDF] Defensa de la diversidad y de la dignidad humana en la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO

JE Triana - Revista Colombiana de bioética, 2012 - redalyc.org
El artículo presenta la revisión y análisis alrededor de la defensa de la diversidad y la
dignidad humana expresada en la Declaración Universal sobre Bioética y Derechos …

[引用][C] Biobanks and privacy