What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project
SK Genuis, W Luth, T Bubela, WS Johnston - Muscle & Nerve, 2023 - Wiley Online Library
Abstract Introduction/Aims Health communication is central to effective, supportive
amyotrophic lateral sclerosis (ALS) clinical care. Guidance for ALS communication is limited …
amyotrophic lateral sclerosis (ALS) clinical care. Guidance for ALS communication is limited …
Meanings and experiences of end-of-life patients and their family caregivers in hospital-to-home transitions: a constructivist grounded theory study
This study explored the meanings and experiences of patients with terminal chronic
diseases and their caregivers, who face the imminence of death in the home environment …
diseases and their caregivers, who face the imminence of death in the home environment …
Overcoming therapeutic nihilism. Breaking bad news of amyotrophic lateral sclerosis—a patient-centred perspective in rare diseases
S Maksymowicz, M Libura, P Malarkiewicz - Neurological Sciences, 2022 - Springer
Amyotrophic lateral sclerosis (ALS) is a rare, incurable, and fatal neurodegenerative disease
with median survival time from onset to death ranging from 20 to 48 months. Breaking bad …
with median survival time from onset to death ranging from 20 to 48 months. Breaking bad …
Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis
SK Genuis, W Luth, T Bubela, WS Johnston - BMC neurology, 2022 - Springer
Background People with amyotrophic lateral sclerosis (ALS) are at high risk for severe
outcomes from Covid-19 infection. Researchers exploring ALS and Covid-19 have focused …
outcomes from Covid-19 infection. Researchers exploring ALS and Covid-19 have focused …
Aspectos éticos da aplicação de ventilação mecânica em cuidados paliativos nas Unidades de Terapia Intensiva: uma revisão narrativa
F da Costa Nascimento… - … A LAS CIENCIAS …, 2024 - ojs.revistacontribuciones.com
A revisão explora a complexa questão ética envolvendo o uso de ventilação mecânica em
cuidados paliativos em UTIs. Em um cenário médico onde decisões críticas são frequentes …
cuidados paliativos em UTIs. Em um cenário médico onde decisões críticas são frequentes …