[HTML][HTML] Assessing the methods, tools, and statistical approaches in Google Trends research: systematic review

A Mavragani, G Ochoa, KP Tsagarakis - Journal of Medical Internet …, 2018 - jmir.org
Background In the era of information overload, are big data analytics the answer to access
and better manage available knowledge? Over the last decade, the use of Web-based data …

Neurology and the Internet: a review

M Moccia, F Brigo, G Tedeschi, S Bonavita… - Neurological …, 2018 - Springer
Nowadays, the Internet is the major source to obtain information about diseases and their
treatments. The Internet is gaining relevance in the neurological setting, considering the …

[HTML][HTML] Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare

F Mazanderani, T Noorani… - Evidence & …, 2020 - bristoluniversitypressdigital.com
This paper explores how personal experience acquires the status of knowledge and/or
evidence in contemporary healthcare contexts that emphasise being both patient-centred …

Perception of risk and shared decision making process in multiple sclerosis

E Cocco, A Caoci, L Lorefice… - Expert Review of …, 2017 - Taylor & Francis
Introduction: Multiple sclerosis (MS) treatment has changed considerably in recent years
thanks to the introduction of ever-more-powerful drugs. Unfortunately, the higher efficacies of …

[HTML][HTML] Public engagement and neurology: An update

L Lavorgna, F Brigo, S Esposito, G Abbadessa… - Brain Sciences, 2021 - mdpi.com
Background: Public engagement (PE) is defined as the involvement of “specialists who
listen, develop their understanding, and interact with non-specialists in non-profit activities of …

[HTML][HTML] Public funding and open access to research: a review of Canadian multiple sclerosis research

C Bakker, C Stephenson, E Stephenson… - Journal of medical …, 2017 - jmir.org
Background Multiple sclerosis (MS), a progressive demyelinating disease of the brain and
spinal cord, is the leading cause of nontraumatic neurological damage in young adults …

From embodied risk to embodying hope: Therapeutic experimentation and experiential information sharing in a contested intervention for Multiple Sclerosis

F Mazanderani, J Kelly, A Ducey - BioSocieties, 2018 - Springer
People who pursue unproven therapies are often portrayed as 'desperate'individuals duped
by medical racketeers peddling 'false hope'. These patients, in contrast, present themselves …

[HTML][HTML] Implementing and assessing a service to demonstrate public impact of faculty research in news and policy sources

CJ Bakker, J McBurney, KV Chew, M Aho… - Journal of the Medical …, 2019 - ncbi.nlm.nih.gov
Background As the need to demonstrate research impact increases, faculty are looking for
new ways to show funders, departments, and institutions that their work is making a …

[PDF][PDF] Re-doing patient experience through design-led research

A Thomson - 2019 - research.gold.ac.uk
This thesis researches and examines how 'patient experience'is understood and
approached through practice in healthcare, social science and design. In the UK, there is a …

[HTML][HTML] Case Report Implementing and assessing a service to demonstrate public impact of faculty research in news and policy sources

CJ Bakker, KV Chew, M Aho, D Reed - jmla.pitt.edu
Background As the need to demonstrate research impact increases, faculty are looking for
new ways to show funders, departments, and institutions that their work is making a …