Technical report: ethical and policy issues in genetic testing and screening of children

LF Ross, HM Saal, KL David, RR Anderson - Genetics in medicine, 2013 - nature.com
The genetic testing and genetic screening of children are commonplace. Decisions about
whether to offer genetic testing and screening should be driven by the best interest of the …

Communicating inherited genetic risk between parent and child: a meta-thematic synthesis

E Rowland, A Metcalfe - International journal of nursing studies, 2013 - Elsevier
OBJECTIVES: Communicating genetic risk is a distressing process for families affected by
inherited genetic conditions. This systematic review identifies and explores the challenges …

Predictive and diagnostic genetic testing in psychiatry

PB Mitchell, B Meiser, A Wilde… - Clinics in laboratory …, 2010 - labmed.theclinics.com
Clin Lab Med 30 (2010) 829–846 doi: 10.1016/j. cll. 2010.07. 001 labmed. theclinics. com
0272-2712/10/$–see front matter© 2010 Elsevier Inc. All rights reserved. biotechnology …

Out of time: theorizing family in social work practice

K Morris, S White, P Doherty… - Child & Family Social …, 2017 - Wiley Online Library
This paper draws on a British Academy (BA) funded study exploring social workers'
conceptions of family using a vignette and focus groups. The policy context is discussed and …

Managing self-responsibility through other-oriented blame: Family accounts of genetic testing

M Arribas-Ayllon, S Sarangi, A Clarke - Social Science & Medicine, 2008 - Elsevier
'Genetic responsibility'has emerged as a key notion for understanding how genetic risk
reshapes patterns of choice, identification and obligation within families. Where previous …

[图书][B] Genetic testing: accounts of autonomy, responsibility and blame

M Arribas-Ayllon, S Sarangi, A Clarke - 2013 - taylorfrancis.com
Advances in molecular genetics have led to the increasing availability of genetic testing for a
variety of inherited disorders. While this new knowledge presents many obvious health …

[图书][B] Down's Syndrome Screening and Reproductive Politics: Care, choice, and Disability in the prenatal clinic

GM Thomas - 2017 - taylorfrancis.com
Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK
and beyond, Down's syndrome screening has become a universal programme in prenatal …

Healthy citizenship beyond autonomy and discipline: Tactical engagements with genetic testing

T Sharon - BioSocieties, 2015 - Springer
In recent decades a model of healthy citizenship has emerged, which construes citizens as
autonomous, responsible and active participants in the management of their health. While …

[图书][B] Conviction: The making and unmaking of the violent brain

O Rollins - 2021 - books.google.com
Exposing ethical dilemmas of neuroscientific research on violence, this book warns against
a dystopian future in which behavior is narrowly defined in relation to our biological makeup …

Enacting genetic responsibility: experiences of mothers who carry the fragile X gene

K Raspberry, D Skinner - Sociology of health & illness, 2011 - Wiley Online Library
A woman who carries the gene for fragile X syndrome (FXS) has a 50 per cent chance per
pregnancy of passing the gene to her sons and daughters. In this paper we analyse …