Advance care planning in serious illness: a narrative review

WE Rosa, S Izumi, DR Sullivan, J Lakin… - Journal of pain and …, 2023 - Elsevier
Context Advance care planning (ACP) intends to support person-centered medical decision-
making by eliciting patient preferences. Research has not identified significant associations …

[HTML][HTML] Inequities among cancer caregivers with diverse identities: a review of the literature and future directions

KR Tan, AR Waters, Q Chen, BA Hendricks… - Current Oncology …, 2023 - Springer
Abstract Purpose of Review The number of older adults with cancer relying on support from
caregivers continues to increase. Health disparities in older adults with cancer often extend …

Availability of family caregiver programs in US cancer centers

JN Odom, A Applebaum, MA Bakitas… - JAMA Network …, 2023 - jamanetwork.com
Importance Family caregivers provide the majority of health care to the 18 million patients
with cancer in the US. Yet despite providing complex medical and nursing care, a large …

Family caregiver inclusion is not a level playing field: toward equity for the chosen families of sexual and gender minority patients

WE Rosa, SC Banerjee… - Palliative Care and Social …, 2022 - journals.sagepub.com
Given the pervasive discrimination experienced by SGM individuals and their chosen
families, it is understandable that SGM patients may not disclose their SO/GI status to …

But parents need help! Pathways to caregiver mental health care in pediatric hospital settings

CG Salley, M Axelrad, E Fischer… - Palliative & Supportive …, 2023 - cambridge.org
Objectives Research and clinical expertise have emphasized the mental health needs of
parents and caregivers of medically complex children. Evidence-based interventions are …

Perceptions of hope among bereaved caregivers of cancer patients who received early palliative care: a content and lexicographic analysis

S Bigi, V Ganfi, E Borelli, L Potenza, F Artioli… - The …, 2022 - academic.oup.com
Background Oncologists' fear of taking away hope from patients when proposing early
palliative care (EPC) is a barrier to the implementation of this model. This study explores …

Improving transitions in care for patients and family caregivers living in rural and underserved areas: the Caregiver Advise, Record, Enable (CARE) Act

JM Griffin, BG Kaufman, L Bangerter… - Journal of aging & …, 2022 - Taylor & Francis
In this Perspective, we contend bold action is needed to improve transitions from hospitals to
home for aging patients and their family caregivers living in rural and underserved areas …

The role of family caregivers in the care of older adults with cancer

V Sun, M Puts, K Haase, S Pilleron, M Hannan… - Seminars in Oncology …, 2021 - Elsevier
Objectives To provide an overview on the role of family caregivers (FCGs) in the care of
older adults with cancer and review quality of life needs for FCGs. Data Sources Journal …

Psychosocial assessment practices for hematopoietic stem cell transplantation: a national survey study

L Wiener, TS Sannes, J Randall, S Lahijana… - Bone marrow …, 2023 - nature.com
Psychosocial health predicts and contributes to medical outcomes for patients undergoing
hematopoietic stem cell transplantation (HSCT). Yet, there are no standards for psychosocial …

Patients' and caregivers' experiences of hospitalization under COVID‐19 visitation restrictions

A Fenton, S Stevens, Z Cost, J Bickford… - Journal of hospital …, 2022 - Wiley Online Library
Background During the COVID‐19 pandemic, hospitals did not allow caregiver visitation.
Little is known about how caregivers' absence affected patients' care. Objective This study …