Clinic, courtroom or (specialist) committee: in the best interests of the critically Ill child?

R Huxtable - Journal of medical ethics, 2018 - jme.bmj.com
Law's processes are likely always to be needed when particularly intractable conflicts arise
in relation to the care of a critically ill child like Charlie Gard. Recourse to law has its merits …

[图书][B] PC Chang and the universal declaration of human rights

Roth, Hans Ingvar - 2018 - degruyter.com
PC Chang and the Universal Declaration of Human Rights is the first biography of PC
Chang (1892-1957), who lived an eventful and cosmopolitan life and was one of the key …

[HTML][HTML] Deciding together? Best interests and shared decision-making in paediatric intensive care

G Birchley - Health Care Analysis, 2014 - Springer
In the western healthcare, shared decision making has become the orthodox approach to
making healthcare choices as a way of promoting patient autonomy. Despite the fact that the …

[图书][B] Wertkonflikte als Herausforderung der Demokratie

U Willems - 2015 - books.google.com
Wertkonflikte wie der Konflikt um die Regelung des Schwangerschaftsabbruches bilden
eine besondere Herausforderung demokratischer Politik. Auf der Basis einer …

For and against the four principles of biomedical ethics

R Huxtable - Clinical Ethics, 2013 - journals.sagepub.com
The four principles approach to biomedical ethics points to respect for autonomy,
beneficence, non-maleficence and justice as the norms that should guide moral agents …

[HTML][HTML] Death, treatment decisions and the permanent vegetative state: evidence from families and experts

S Holland, C Kitzinger, J Kitzinger - Medicine, Health Care and Philosophy, 2014 - Springer
Some brain injured patients are left in a permanent vegetative state, ie, they have
irreversibly lost their capacity for consciousness but retained some autonomic physiological …

European perspectives on ethics and law in end-of-life care

RJ Jox, RJ Horn, R Huxtable - Handbook of clinical neurology, 2013 - Elsevier
End-of-life care practices and attitudes in Europe are highly diverse, which is unsurprising
given the variety of cultural and religious patterns across this region. The most marked …

[图书][B] Continuous sedation at the end of life: Ethical, clinical and legal perspectives

S Sterckx, K Raus, F Mortier - 2013 - books.google.com
Continuous sedation until death (sometimes referred to as terminal sedation or palliative
sedation) is an increasingly common practice in end-of-life care. However, it raises …

Compassionate care during withdrawal of treatment: a secondary analysis of ICU nurses' experiences

N Efstathiou, J Ives - Nursing ethics, 2018 - journals.sagepub.com
Background: Withdrawal of treatment is a common practice in intensive care units when
treatment is considered futile. Compassion is an important aspect of care; however, it has …

[HTML][HTML] TRUST4RD: tool for reducing uncertainties in the evidence generation for specialised treatments for rare diseases

L Annemans, A Makady - Orphanet Journal of Rare Diseases, 2020 - Springer
Background Many treatments developed for rare diseases will have an Orphan Medicinal
Product (OMP) designation, indicating that they are likely to deliver benefit in an area of high …