“It'sa Postcode Lottery”: How Do People Affected by Dementia in Wales Experience Their Diagnosis and Post-Diagnostic Support, and How May These Be Improved?

JR Roberts, G Windle, CA MacLeod… - International Journal of …, 2024 - mdpi.com
National dementia strategies are government policies that guide the provision of appropriate
support for people living with dementia. These strategies, developed through extensive …

Stakeholder involvement in dementia research: a qualitative approach with healthy senior citizens and providers of dementia care in Germany

A Kowe, S Köhler, OA Klein, C Lüthje… - Health & Social Care …, 2022 - Wiley Online Library
Engaging stakeholders in health‐related research is becoming commonplace internationally
and is increasingly considered best research practice to improve care management …

Self-Disclosure and Social Media Use among Younger and Older People with Dementia: An Internet-Mediated Mixed-Methods Study

G Kohl, WQ Koh, K Scior… - International Journal of …, 2023 - Taylor & Francis
Social media can facilitate self-disclosure of a stigmatized identity. This mixed-methods
study explores self-disclosure by people with dementia on social media, comparing patterns …

Evaluating the extent of participation of people living with dementia in research

S Niner, F Bran, D Mohan… - International Journal of …, 2023 - journals.sagepub.com
Most research about dementia consults with carers, community workers, nurses or other
health professionals, but rarely with people living with dementia (PLWD). This paper …

How meeting centres continue to support people affected by dementia: report on UK COVID-19 impact

S Evans, J Bray, D Brooker - Working with Older People, 2021 - emerald.com
Purpose Because of COVID-19 restrictions, Meeting Centres (MCs) for people affected by
dementia in the UK ceased to meet physically but continued to provide remote support. The …

Strategies for recruiting people with dementia to music therapy studies: Systematic review

FA Baker, J Pool, K Johansson, T Wosch… - Journal of Music …, 2021 - academic.oup.com
Positive effects of music therapy for people with dementia and their family carers are
reported in a growing number of studies. However, small sample sizes or low recruitment …

What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study

B Field, E Coates, G Mountain - Dementia, 2021 - journals.sagepub.com
Background Health policy promotes post-diagnostic support for people affected by
dementia. Evidence suggests psychosocial interventions can effectively support people …

Recruitment and retention of participants in longitudinal studies after a natural disaster

GFH McLeod, LJ Horwood… - … and life course …, 2022 - bristoluniversitypressdigital.com
Climate change and population growth will increase vulnerability to natural and human-
made disasters or pandemics. Longitudinal research studies may be adversely impacted by …

[HTML][HTML] Is the Invisibility of Dementia a Super-Power or a Curse? A Reflection on the SUNshiners' Questionnaire into the Public Understanding of Dementia as an …

D Tingley, R Ashworth, D Torres Sanchez… - International Journal of …, 2024 - mdpi.com
The SUNshiners group includes people in the early stages of dementia with an interest in
dementia activism and research. The group found that despite the growing awareness of …

Negotiating tensions between methodology and procedural ethics

JR Fletcher - Journal of Gerontological Social Work, 2019 - Taylor & Francis
In this commentary, I consider what can go wrong in research when tensions arise between
methodology and procedural ethics. I recount difficulties negotiating and implementing a …