“It'sa Postcode Lottery”: How Do People Affected by Dementia in Wales Experience Their Diagnosis and Post-Diagnostic Support, and How May These Be Improved?
JR Roberts, G Windle, CA MacLeod… - International Journal of …, 2024 - mdpi.com
National dementia strategies are government policies that guide the provision of appropriate
support for people living with dementia. These strategies, developed through extensive …
support for people living with dementia. These strategies, developed through extensive …
Stakeholder involvement in dementia research: a qualitative approach with healthy senior citizens and providers of dementia care in Germany
A Kowe, S Köhler, OA Klein, C Lüthje… - Health & Social Care …, 2022 - Wiley Online Library
Engaging stakeholders in health‐related research is becoming commonplace internationally
and is increasingly considered best research practice to improve care management …
and is increasingly considered best research practice to improve care management …
Self-Disclosure and Social Media Use among Younger and Older People with Dementia: An Internet-Mediated Mixed-Methods Study
Social media can facilitate self-disclosure of a stigmatized identity. This mixed-methods
study explores self-disclosure by people with dementia on social media, comparing patterns …
study explores self-disclosure by people with dementia on social media, comparing patterns …
Evaluating the extent of participation of people living with dementia in research
Most research about dementia consults with carers, community workers, nurses or other
health professionals, but rarely with people living with dementia (PLWD). This paper …
health professionals, but rarely with people living with dementia (PLWD). This paper …
How meeting centres continue to support people affected by dementia: report on UK COVID-19 impact
S Evans, J Bray, D Brooker - Working with Older People, 2021 - emerald.com
Purpose Because of COVID-19 restrictions, Meeting Centres (MCs) for people affected by
dementia in the UK ceased to meet physically but continued to provide remote support. The …
dementia in the UK ceased to meet physically but continued to provide remote support. The …
Strategies for recruiting people with dementia to music therapy studies: Systematic review
Positive effects of music therapy for people with dementia and their family carers are
reported in a growing number of studies. However, small sample sizes or low recruitment …
reported in a growing number of studies. However, small sample sizes or low recruitment …
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study
B Field, E Coates, G Mountain - Dementia, 2021 - journals.sagepub.com
Background Health policy promotes post-diagnostic support for people affected by
dementia. Evidence suggests psychosocial interventions can effectively support people …
dementia. Evidence suggests psychosocial interventions can effectively support people …
Recruitment and retention of participants in longitudinal studies after a natural disaster
GFH McLeod, LJ Horwood… - … and life course …, 2022 - bristoluniversitypressdigital.com
Climate change and population growth will increase vulnerability to natural and human-
made disasters or pandemics. Longitudinal research studies may be adversely impacted by …
made disasters or pandemics. Longitudinal research studies may be adversely impacted by …
[HTML][HTML] Is the Invisibility of Dementia a Super-Power or a Curse? A Reflection on the SUNshiners' Questionnaire into the Public Understanding of Dementia as an …
D Tingley, R Ashworth, D Torres Sanchez… - International Journal of …, 2024 - mdpi.com
The SUNshiners group includes people in the early stages of dementia with an interest in
dementia activism and research. The group found that despite the growing awareness of …
dementia activism and research. The group found that despite the growing awareness of …
Negotiating tensions between methodology and procedural ethics
JR Fletcher - Journal of Gerontological Social Work, 2019 - Taylor & Francis
In this commentary, I consider what can go wrong in research when tensions arise between
methodology and procedural ethics. I recount difficulties negotiating and implementing a …
methodology and procedural ethics. I recount difficulties negotiating and implementing a …