Tracheostomy in infants and children

KF Watters - Respiratory Care, 2017 - rc.rcjournal.com
Over the last decade, tracheostomy has been increasingly performed in children, aligned
with the improvements in neonatal and pediatric ICU care. Nowadays, the majority of …

Long-term non-invasive ventilation in children

A Amaddeo, A Frapin, B Fauroux - The Lancet Respiratory Medicine, 2016 - thelancet.com
Use of long-term non-invasive ventilation is increasing exponentially worldwide in children
of all ages. The treatment entails delivery of ventilatory assistance through a non-invasive …

Two‐year mortality, complications, and healthcare use in children with medicaid following tracheostomy

K Watters, M O'Neill, H Zhu, RJ Graham… - The …, 2016 - Wiley Online Library
Objectives/Hypothesis To assess patient characteristics associated with adverse outcomes
in the first 2 years following tracheostomy, and to report healthcare utilization and cost of …

Chronic illness in pediatric critical care

S Murphy Salem, RJ Graham - Frontiers in Pediatrics, 2021 - frontiersin.org
Children and Youth with Special Healthcare Needs (CYSHCN), children with medical
complexity (CMC), and children with chronic, critical illness (CCI) represent pediatric …

Quality of life in home-ventilated children and their families

R González, A Bustinza, SN Fernandez… - European Journal of …, 2017 - Springer
HMV (home mechanical ventilation) in children has increased over the last years. The aim of
the study was to assess perceived quality of life (QOL) of these children and their families as …

Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of …

S Wiegand-Grefe, A Liedtke, L Morgenstern, A Hoff… - BMC pediatrics, 2022 - Springer
Background Advances in genetic and pharmaceutical technology and pediatric care have
enabled treatment options for an increasing number of rare diseases in affected children …

Quality of life in children with home mechanical ventilation–a scoping review

J Mattson, J Lunnelie, T Löfholm… - SAGE open …, 2022 - journals.sagepub.com
Introduction Home mechanical ventilation is an established method to support children
suffering from chronic respiratory insufficiency, still more research is needed regarding …

Non-invasive ventilation in children with neuromuscular disease

B Fauroux, S Khirani, L Griffon, T Teng… - Frontiers in …, 2020 - frontiersin.org
The respiratory muscles are rarely spared in children with neuromuscular diseases (NMD)
which puts them at risk of alveolar hypoventilation. The role of non-invasive ventilation (NIV) …

Mortality and respiratory support in X-linked myotubular myopathy: a RECENSUS retrospective analysis

RJ Graham, F Muntoni, I Hughes, SW Yum… - Archives of disease in …, 2020 - adc.bmj.com
Purpose Individuals with X-linked myotubular myopathy (XLMTM) who survive infancy
require extensive supportive care, including ventilator assistance, wheelchairs and feeding …

Long-term ventilation for children with chronic lung disease of infancy

CD Baker - Current opinion in pediatrics, 2019 - journals.lww.com
Long-term ventilation for children with chronic lung disease... : Current Opinion in Pediatrics
Long-term ventilation for children with chronic lung disease of infancy : Current Opinion in …