Palliative care utilization in oncology and hemato-oncology: a systematic review of cognitive barriers and facilitators from the perspective of healthcare professionals …
Background Despite the high potential to improve the quality of life of patients and families,
palliative care services face significant obstacles to their use. In countries with high-resource …
palliative care services face significant obstacles to their use. In countries with high-resource …
[HTML][HTML] The impact of specialty palliative care in pediatric oncology: a systematic review
EC Kaye, MS Weaver, LH DeWitt, E Byers… - Journal of pain and …, 2021 - Elsevier
Context Children with cancer and their families have complex needs related to symptoms,
decision-making, care planning, and psychosocial impact extending across the illness …
decision-making, care planning, and psychosocial impact extending across the illness …
Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: a qualitative study
K Hein, K Knochel, V Zaimovic, D Reimann… - Palliative …, 2020 - journals.sagepub.com
Background: Although international guidelines recommend discussions about goals of care
and treatment options for children with severe and life-limiting conditions, there are still few …
and treatment options for children with severe and life-limiting conditions, there are still few …
Place of death of children with complex chronic conditions: cross-national study of 11 countries
C Håkanson, J Öhlén, U Kreicbergs… - European journal of …, 2017 - Springer
Cross-national understanding of place of death is crucial for health service systems for their
provision of efficient and equal access to paediatric palliative care. The objectives of this …
provision of efficient and equal access to paediatric palliative care. The objectives of this …
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
A Bronsema, T Theißen, K Oechsle, J Wikert… - BMC palliative …, 2022 - Springer
Background This study examined care needs and utilisation of psychosocial support
services among parents of children who had received specialist paediatric palliative care, as …
services among parents of children who had received specialist paediatric palliative care, as …
The emotional experience of caring for children in Pediatric Palliative Care: a qualitative study among a home-based Interdisciplinary Care Team
P Rico-Mena, J Güeita-Rodríguez, R Martino-Alba… - Children, 2023 - mdpi.com
The healthcare providers caring for children with life-threatening illnesses experience
considerable compassion fatigue. The purpose of this study was to describe the feelings and …
considerable compassion fatigue. The purpose of this study was to describe the feelings and …
Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study
J Goldhagen, M Fafard, K Komatz, T Eason… - BMC palliative …, 2016 - Springer
Background Children with chronic complex-medical conditions comprise a small minority of
children who require substantial healthcare with major implications for hospital utilization …
children who require substantial healthcare with major implications for hospital utilization …
[HTML][HTML] “Let's bring her home first.” Patient characteristics and place of death in specialized pediatric palliative home care
HU Bender, MB Riester, GD Borasio… - Journal of pain and …, 2017 - Elsevier
Context Specialized pediatric palliative home care (SPPHC) is the main pediatric palliative
care structure in Germany. Detailed data on patient characteristics and care are sparse …
care structure in Germany. Detailed data on patient characteristics and care are sparse …
Pediatric patients receiving specialized palliative home care according to German law: a prospective multicenter cohort study
S Nolte-Buchholtz, B Zernikow, J Wager - Children, 2018 - mdpi.com
In Germany, every child with a life-limiting condition suffering from symptoms that cannot
sufficiently be controlled is eligible by law for specialized pediatric palliative home care …
sufficiently be controlled is eligible by law for specialized pediatric palliative home care …
[HTML][HTML] El final de vida en pacientes atendidos por equipos de cuidados paliativos pediátricos. Estudio observacional multicéntrico
MJP Cantero, JMM Asencio, LN Marchena… - Anales de …, 2022 - Elsevier
Introducción Cada año fallecen en España alrededor de 2000 niños y adolescentes; sin
embargo, conocemos poco las particularidades que envuelven a la muerte en pediatría. El …
embargo, conocemos poco las particularidades que envuelven a la muerte en pediatría. El …