Recruiting and retaining people with disabilities for qualitative health research: Challenges and solutions

JR Banas, S Magasi, K The… - Qualitative Health …, 2019 - journals.sagepub.com
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD
are significantly underrepresented in health research. Even when researchers purposively …

Stigma research in the field of intellectual disabilities: A scoping review on the perspective of care providers

HA Pelleboer-Gunnink… - International journal …, 2021 - Taylor & Francis
Objectives Care providers are key agents in the lives of individuals with an intellectual
disability (ID). The quality of their support can be affected by manifestations of stigma. This …

Ethical considerations in qualitative case study research recruiting participants with profound intellectual disabilities

D Haines - Research Ethics, 2017 - journals.sagepub.com
Drawing on the author's experience carrying out qualitative research in the field of
occupational therapy with people with intellectual disabilities, this article explores ethical …

Facilitators and barriers to co‐research by people with dementia and academic researchers: findings from a qualitative study

J Waite, F Poland, G Charlesworth - Health Expectations, 2019 - Wiley Online Library
Background Public and patient involvement (PPI) is now established in dementia research.
Barriers and facilitators to engagement from family carers and people in early stages of …

[PDF][PDF] Accessibility in questionnaire research: Integrating universal design to increase the participation of individuals with learning disabilities

LD Goegan, AI Radil, LM Daniels - 2018 - era.library.ualberta.ca
This paper explores how to apply the principles of accommodations and universal design
(UD) in research methods involved in quantitative research (eg questionnaires). In …

[HTML][HTML] Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities: lessons learned within the Move it, Move ID!-project

L Maenhout, M Verloigne, D Cairns, G Cardon… - Research Involvement …, 2023 - Springer
Background Co-creation is a method to develop acceptable, contextually appropriate and
potentially more effective interventions. Adolescents with intellectual disabilities (ID) …

[HTML][HTML] Self-reported measures in health research for people with intellectual disabilities: an inclusive pilot study on suitability and reliability

K Vlot-van Anrooij, H Tobi, TIM Hilgenkamp… - BMC Medical Research …, 2018 - Springer
Background The lack of suitable and reliable scales to measure self-reported health and
health behaviour among people with intellectual disabilities (ID) is an important …

Researching vulnerable participants: The role of critical reflexivity in overcoming methodological challenges

M Nikidehaghani, F Hui-Truscott… - International Journal of …, 2023 - journals.sagepub.com
In this paper, we critically reflect on the methodological challenges encountered during a
qualitative research project that examined the effectiveness of the Australian National …

[HTML][HTML] Participation of people with disabilities in web-based research

L Vereenooghe - Zeitschrift für Psychologie, 2021 - econtent.hogrefe.com
Web-based research has many advantages. However, the methods used may mean that
people with disabilities are unable to participate. This paper aims to raise awareness and …

Conducting video therapy with adults with an intellectual disability: A qualitative study of qualified and trainee psychologists' experiences

H Blocksidge, L Willis, J Codd - British Journal of Learning …, 2023 - Wiley Online Library
Background Online therapy is becoming increasingly popular as well as necessary. There is
little research regarding the experience of psychologists delivering online therapy to …