Narrative medicine pinpoints loss of autonomy and stigma in Parkinson's disease

BW Florijn, R Kloppenborg, AA Kaptein… - npj Parkinson's …, 2023 - nature.com
Parkinson's disease characteristics can create a self-perceived sense of stigmatization and
disapproval by others, thereby affecting self-perceived autonomy. This study investigated the …

Multidisciplinary intensive rehabilitation program for people with Parkinson's disease: gaps between the clinic and real-world mobility

M Cohen, T Herman, N Ganz, I Badichi… - International Journal of …, 2023 - mdpi.com
Intensive rehabilitation programs improve motor and non-motor symptoms in people with
Parkinson's disease (PD), however, it is not known whether transfer to daily-living walking …

Exploring the experiences, priorities and preferences of people living with Parkinson's on exercise and physical activity promotion in the UK

L Agley, P Hartley, L Lafortune - PloS one, 2024 - journals.plos.org
Background People with Parkinson's (PwP) want access to timely, relevant, and specific
exercise and physical activity (PA) information to enable them to manage their symptoms …

Impact of digital technologies on self-efficacy in people with Parkinson's: a scoping review protocol

AM Hall, S Aroori, CB Carroll, E Meinert, V Allgar - BMJ open, 2023 - bmjopen.bmj.com
Introduction Parkinson's disease (PD) is the second most common neurological disease
globally, for which currently no one definitive cause or cure exists. Estimates suggest that …

Intervention components in the self-management of Parkinson's: a mixed-methods synthesis of qualitative and quantitative evidence

M Armstrong, K Walters, N Davies, D Nimmons… - BMC Health Services …, 2024 - Springer
Introduction Self-management interventions consist of multiple components to support
people in the management of medical, emotional, and behavioural aspects of their …

Experiences of Living With the Nonmotor Symptoms of Parkinson's Disease: A Photovoice Study

LJ Smith, J Callis, S Bridger‐Smart… - Health …, 2024 - Wiley Online Library
Abstract Background Nonmotor symptoms (NMSs) are frequently experienced by people
with Parkinson's disease (PD) and are often perceived as their most bothersome symptoms …

Digital Intervention Promoting Physical Activity in People Newly Diagnosed with Parkinson's Disease: Feasibility and Acceptability of the Knowledge, Exercise-Efficacy …

L Agley, P Hartley, D Duffill, A Iqbal… - Journal of …, 2024 - content.iospress.com
Background: Exercise promotion interventions for people with Parkinson's disease (PD) are
often offered on a face-to-face basis, follow a generic “one-size-fit-all” approach, and are not …

A programme evaluation of 'First Steps': A peer-conceived, developed and led self-management intervention for people after a Parkinson's diagnosis

J Collett, S Lawrie, S Bromley, P Harling… - Clinical …, 2024 - journals.sagepub.com
Objective A diagnosis of Parkinson's often leads to uncertainty about the future and loss of
perceived control. Peer support may offer a means to address these concerns and promote …

Clinical and cost-effectiveness of 'Live Well with Parkinson's' self-management intervention versus treatment as usual for improving quality of life for people with …

K Walters, M Armstrong, B Gardner, G Ambler… - Trials, 2023 - Springer
Abstract Background The Live Well with Parkinson's Self-Management Toolkit is designed
for use in the NHS to support people with Parkinson's, their carers and health professionals …

Balancing feeling 'prepared'without feeling 'devoured': A qualitative study of self‐care from the perspective of self‐empowered persons living with Parkinson's disease …

JL Luckhaus, A Clareborn, M Hägglund… - Health …, 2024 - Wiley Online Library
Abstract Introduction Parkinson's Disease (PD) is a complex neurodegenerative disease
resulting in a wide range of motor and nonmotor symptoms for which the treatment regimen …