Literature review of positive functioning in families with children with a disability

R Ylvén, E Björck‐Åkesson… - Journal of Policy and …, 2006 - Wiley Online Library
Research about families in stressful circumstances has a perspective that emphasizes
health, positive functioning, and quality of life. The resiliency model of family stress …

Gender differences and simililarities in the experience of parenting a child with a health problem: current state of knowledge

D Pelchat, H Lefebvre… - Journal of child health …, 2007 - journals.sagepub.com
The birth of a child is a transitional situation that triggers stress in the family and each person
has to use adjustment strategies allowing them to reposition gradually in relation to …

Anxiety, meaning in life, self-efficacy and resilience in families with one or more members with special educational needs and disability during COVID-19 pandemic in …

A Tsibidaki - Research in developmental disabilities, 2021 - Elsevier
Abstract Background According to World Health Organization, the COVID-19 pandemic
sweeps across the world inducing considerable fear, worry and concern in the population …

The caregiving experiences of fathers and mothers of children with rare diseases in Italy: Challenges and social support perceptions

P Cardinali, L Migliorini, N Rania - Frontiers in psychology, 2019 - frontiersin.org
Family caregiving is a growing phenomenon with the increased prevalence of chronic
illness and shorter hospitalizations. Rare diseases pose significant challenges not only to …

The supportive care needs of parents with a child with a rare disease: results of an online survey

LJ Pelentsov, AL Fielder, TA Laws, AJ Esterman - BMC family practice, 2016 - Springer
Background Parents caring for a child affected by a rare disease have unmet needs, the
origins of which are complex and varied. Our aim was to determine the supportive care …

The supportive care needs of parents with a child with a rare disease: a qualitative descriptive study

LJ Pelentsov, AL Fielder, AJ Esterman - Journal of pediatric nursing, 2016 - Elsevier
Highlights•Focus groups used to investigate needs of parents of a child with a rare
disease.•Parents felt socially isolated caring for their child with a rare disease.•Often parents …

[图书][B] A relational approach to rehabilitation: Thinking about relationships after brain injury

C Bowen, S Palmer, G Yeates - 2018 - books.google.com
This book is one of very few books on the topic of family adaptation and relationships after
brain injury. It is an important topic because of the unique impact that such a trauma can …

Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia

CA Feeley, A Turner-Henson, BJ Christian… - Journal of pediatric …, 2014 - Elsevier
Little is known about the influence of sleep quality, stress, and caregiver burden on quality of
life in maternal caregivers of young children with bronchopulmonary dysplasia (BPD). In 61 …

Parents' experiences following children's moderate to severe traumatic brain injury: A clash of cultures

CI Roscigno, KM Swanson - Qualitative health research, 2011 - journals.sagepub.com
Little is understood about parents' experiences following children's moderate to severe
traumatic brain injury (TBI). Using descriptive phenomenology, we explored common …

[图书][B] Principles of cognitive rehabilitation

V Nejati - 2022 - books.google.com
Principles of Cognitive Rehabilitation is designed to familiarize readers with the deep-rooted
principles of cognitive rehabilitation and cognitive training. Presenting a new comprehensive …