The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers

SM Aoun, J Rosenberg, R Richmond… - Palliative Care and …, 2023 - journals.sagepub.com
Background and Aim: Comprehensive evaluations that include the experience of patients
and service providers are vital if interventions are to be translated into the standard practice …

[HTML][HTML] Discomfort with suffering and dying, a cross-sectional survey of the general public

B Quintiens, T Smets, K Chambaere… - Journal of Pain and …, 2023 - Elsevier
Context Death and the process of dying have become increasingly medicalized and
professionalized. The associated cultural estrangement from death may affect how …

The integrated process model of loss and grief-An interprofessional understanding

MB Guldin, C Leget - Death studies, 2024 - Taylor & Francis
Despite the vast developments in research on loss and grief, dominant grief models fall short
in reflecting the comprehensive issues grieving persons are facing. Three causes seem to …

'The more you give, the better it is for you. You know the reward is greater than the effort': the Compassionate Communities Connectors' experience

SM Aoun, R Richmond, K Noonan… - Palliative Care and …, 2022 - journals.sagepub.com
Background: The Compassionate Communities Connectors programme is a volunteer-led
initiative designed to enhance the social networks of families living with chronic or life …

Age-Friendly Communities: Are they also “Friendly” for Death, Dying, Grief, and Bereavement?

J Brassolotto, A Banerjee - Canadian Journal on Aging/La Revue …, 2024 - cambridge.org
The age-friendly movement aims to ensure that people can live healthy and meaningful lives
as they age. It is committed to activity and inclusion, with policies, services, and structures …

Advance Care Planning for Children With Rare Diseases: A Pilot RCT

ME Lyon, JL Fraser, JD Thompkins, H Clark… - …, 2024 - publications.aap.org
BACKGROUND AND OBJECTIVE Pediatric rare diseases are often life-limiting conditions
and/or require constant caregiving. Investigators assessed the initial efficacy of the FAmily …

[HTML][HTML] Palliative and end-of-life care for people living with motor neurone disease: ongoing challenges and necessity for shifting directions

VC Velaga, A Cook, K Auret, T Jenkins, G Thomas… - Brain Sciences, 2023 - mdpi.com
Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

Willingness to support neighbours practically or emotionally: a cross-sectional survey among the general public

B Quintiens, T Smets, K Chambaere… - Palliative Care and …, 2024 - journals.sagepub.com
Background: Wider social networks are increasingly recognized for supporting people with
care needs. Health-promoting initiatives around the end of life aim to foster these social …

Using the Carers' Alert Thermometer tool to identify needs and support family caregivers of people with motor neurone disease: moving beyond needs assessments

SM Aoun, MR O'Brien… - Palliative Care and Social …, 2024 - journals.sagepub.com
Background: Family caregivers of people with motor neurone disease (MND) experience
adverse health outcomes as a result of their caregiving experience. This may be alleviated if …

The compassionate communities connectors program: effect on healthcare usage

SM Aoun, N Bear, B Rumbold - Palliative Care and Social …, 2023 - journals.sagepub.com
Background: Public health approaches to palliative and end-of-life care focus on enhancing
the integration of services and providing a comprehensive approach that engages the …