Youth engagement in child maltreatment research: gaps, barriers, and approaches

N Racine, K Greer, G Dimitropoulos… - Child Abuse & …, 2023 - Elsevier
Youth engagement in research, which involves meaningfully collaborating with youth as full
partners in the research process, has contributed to improved research collaborations …

Patient advocates and researchers as partners in cancer research: A winning combination

LD Porter, KA Goodman, J Mailman… - American Society of …, 2023 - ascopubs.org
Inclusion of advocates as partners in research is now required by numerous international
funding agencies. The role of advocates has expanded in recent years to include all areas of …

[HTML][HTML] The Impact of Advance Care Planning on Healthcare Professionals' Well-being: A Systematic Review

LG Souza, DA Bouba, R de Carvalho Corôa… - Journal of Pain and …, 2023 - Elsevier
Context Advance care planning (ACP) improves care for patients with chronic illnesses and
reduces family stress. However, the impact of ACP interventions on healthcare …

[HTML][HTML] Engaging patients in anesthesiology research: a rewarding frontier

M Verret, DA Fergusson, SG Nicholls… - Canadian Journal of …, 2023 - Springer
Patient-oriented research is an emerging approach that engages patients, clinicians, and
researchers to ensure focus on patient-identified priorities. 1 From a clinical perspective …

[HTML][HTML] Coaching to strengthen critical success factors in integrative care for chronic fatigue patients: the Patient Needs-Resources Model

D Araja, A Krumina, Z Nora-Krukle… - Frontiers in …, 2023 - frontiersin.org
Theoretical and empirical studies discover that an integrative approach is particularly
important in chronic disorders and multiple long-term conditions, such as chronic fatigue …

Exploring the outcomes of research engagement using the observation method in an online setting

DA Marshall, N Suryaprakash, DC Lavallee… - BMJ open, 2023 - bmjopen.bmj.com
Objective The objective of this study was to explore the outcomes of research engagement
(patient engagement, PE) in the context of qualitative research. Design We observed …

[HTML][HTML] Studying How Patient Engagement Influences Research: A Mixed Methods Study

DA Marshall, N Suryaprakash, DC Lavallee… - The Patient-Patient …, 2024 - Springer
Background There is evidence supporting the value of patient engagement (PE) in research
to patients and researchers. However, there is little research evidence on the influence of PE …

Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations

S Haroutounian, KJ Holzer, RD Kerns, C Veasley… - Pain, 2022 - journals.lww.com
In the traditional clinical research model, patients are typically involved only as participants.
However, there has been a shift in recent years highlighting the value and contributions that …

[HTML][HTML] The Potential of Integrative Cancer Treatment Using Melatonin and the Challenge of Heterogeneity in Population-Based Studies: A Case Report of Colon …

E Smorodin, V Chuzmarov, T Veidebaum - Current Oncology, 2024 - mdpi.com
Melatonin is a multifunctional hormone regulator that maintains homeostasis through
circadian rhythms, and desynchronization of these rhythms can lead to gastrointestinal …

Partnership-focussed Principles-driven Online co-Design (P-POD): a mixed-methods evaluation of a novel online co-design process

MF Coulston, PA Spittle, DC McDonald, DR Toovey… - medRxiv, 2023 - medrxiv.org
Purpose Co-design involves stakeholders in designing rehabilitation interventions that
impact their health (end-users) or professional lives (clinicians and researchers) …